Title |
Portuguese validation of the Cambridge pulmonary hypertension outcome review (CAMPHOR) questionnaire
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Published in |
Health and Quality of Life Outcomes, July 2016
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DOI | 10.1186/s12955-016-0513-8 |
Pubmed ID | |
Authors |
Abílio Reis, James Twiss, Margarida Vicente, Fabienne Gonçalves, Luísa Carvalho, José Meireles, Alzira Melo, Stephen P. McKenna, Luís Almeida |
Abstract |
Patients with pulmonary arterial hypertension (PAH) and other forms of precapillary pulmonary hypertension (PH) have impaired quality of life (QoL). The Cambridge Pulmonary Hypertension Outcome Review (CAMPHOR) is a PH-specific patient-reported outcome measure that assesses symptoms, activity limitations and QoL. It was originally developed in UK-English. The main objective of this study was to create an adaptation of the CAMPHOR suitable for a Portuguese-speaking population. A multi-step approach was followed: bilingual and lay panel translation; cognitive debriefing interviews; and psychometric testing in repeated postal surveys (2 weeks apart) including assessment of internal consistency, reproducibility and validity. The Nottingham Health Profile (NHP) questionnaire was used as a comparator instrument to test convergent validity. The CAMPHOR was translated without difficulty by the two panels. Cognitive debriefing interviews showed the questionnaire was easily understood and considered relevant to patients' experience with their illness. Psychometric evaluation was performed with 50 PAH patients (47 ± 14 years, 37 women). Cronbach's alpha coefficients showed good internal consistency for the three CAMPHOR scales [Symptoms = 0.95; Activities = 0.93 and QoL = 0.94]. Test-retest coefficients showed that all scales had excellent reliability (Symptoms = 0.94; Activities = 0.89 and QoL = 0.93), indicating low levels of random measurement error. The CAMPHOR correlated as expected with the NHP. The magnitude of correlations followed a similar pattern to those in the original development study. The CAMPHOR also exhibited evidence of known group validity in its ability to distinguish between self-reported severity and general health groups. A valid and reliable version of the CAMPHOR questionnaire for the European Portuguese-speaking population was developed and is recommended for use. |
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Unknown | 1 | 100% |
Demographic breakdown
Type | Count | As % |
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Members of the public | 1 | 100% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
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Unknown | 46 | 100% |
Demographic breakdown
Readers by professional status | Count | As % |
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Student > Master | 7 | 15% |
Researcher | 6 | 13% |
Student > Doctoral Student | 5 | 11% |
Student > Postgraduate | 5 | 11% |
Professor | 4 | 9% |
Other | 10 | 22% |
Unknown | 9 | 20% |
Readers by discipline | Count | As % |
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Medicine and Dentistry | 15 | 33% |
Nursing and Health Professions | 8 | 17% |
Agricultural and Biological Sciences | 2 | 4% |
Psychology | 2 | 4% |
Materials Science | 2 | 4% |
Other | 6 | 13% |
Unknown | 11 | 24% |