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Portuguese validation of the Cambridge pulmonary hypertension outcome review (CAMPHOR) questionnaire

Overview of attention for article published in Health and Quality of Life Outcomes, July 2016
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Title
Portuguese validation of the Cambridge pulmonary hypertension outcome review (CAMPHOR) questionnaire
Published in
Health and Quality of Life Outcomes, July 2016
DOI 10.1186/s12955-016-0513-8
Pubmed ID
Authors

Abílio Reis, James Twiss, Margarida Vicente, Fabienne Gonçalves, Luísa Carvalho, José Meireles, Alzira Melo, Stephen P. McKenna, Luís Almeida

Abstract

Patients with pulmonary arterial hypertension (PAH) and other forms of precapillary pulmonary hypertension (PH) have impaired quality of life (QoL). The Cambridge Pulmonary Hypertension Outcome Review (CAMPHOR) is a PH-specific patient-reported outcome measure that assesses symptoms, activity limitations and QoL. It was originally developed in UK-English. The main objective of this study was to create an adaptation of the CAMPHOR suitable for a Portuguese-speaking population. A multi-step approach was followed: bilingual and lay panel translation; cognitive debriefing interviews; and psychometric testing in repeated postal surveys (2 weeks apart) including assessment of internal consistency, reproducibility and validity. The Nottingham Health Profile (NHP) questionnaire was used as a comparator instrument to test convergent validity. The CAMPHOR was translated without difficulty by the two panels. Cognitive debriefing interviews showed the questionnaire was easily understood and considered relevant to patients' experience with their illness. Psychometric evaluation was performed with 50 PAH patients (47 ± 14 years, 37 women). Cronbach's alpha coefficients showed good internal consistency for the three CAMPHOR scales [Symptoms = 0.95; Activities = 0.93 and QoL = 0.94]. Test-retest coefficients showed that all scales had excellent reliability (Symptoms = 0.94; Activities = 0.89 and QoL = 0.93), indicating low levels of random measurement error. The CAMPHOR correlated as expected with the NHP. The magnitude of correlations followed a similar pattern to those in the original development study. The CAMPHOR also exhibited evidence of known group validity in its ability to distinguish between self-reported severity and general health groups. A valid and reliable version of the CAMPHOR questionnaire for the European Portuguese-speaking population was developed and is recommended for use.

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Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 46 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Unknown 46 100%

Demographic breakdown

Readers by professional status Count As %
Student > Master 7 15%
Researcher 6 13%
Student > Doctoral Student 5 11%
Student > Postgraduate 5 11%
Professor 4 9%
Other 10 22%
Unknown 9 20%
Readers by discipline Count As %
Medicine and Dentistry 15 33%
Nursing and Health Professions 8 17%
Agricultural and Biological Sciences 2 4%
Psychology 2 4%
Materials Science 2 4%
Other 6 13%
Unknown 11 24%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 1. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 26 July 2016.
All research outputs
#18,466,238
of 22,881,154 outputs
Outputs from Health and Quality of Life Outcomes
#1,671
of 2,160 outputs
Outputs of similar age
#281,792
of 365,298 outputs
Outputs of similar age from Health and Quality of Life Outcomes
#26
of 37 outputs
Altmetric has tracked 22,881,154 research outputs across all sources so far. This one is in the 11th percentile – i.e., 11% of other outputs scored the same or lower than it.
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We're also able to compare this research output to 37 others from the same source and published within six weeks on either side of this one. This one is in the 1st percentile – i.e., 1% of its contemporaries scored the same or lower than it.