Data silos are undermining drug development and failing rare disease patients

Overview of attention for article published in Orphanet Journal of Rare Diseases, April 2021

Altmetric Badge

About this Attention Score

In the top 5% of all research outputs scored by Altmetric
High Attention Score compared to outputs of the same age (92nd percentile)
High Attention Score compared to outputs of the same age and source (93rd percentile)

Mentioned by

news: 1 news outlet

twitter: 29 X users

Citations

dimensions_citation: 18 Dimensions

Readers on

mendeley: 37 Mendeley

Summary News X Dimensions citations

So far, Altmetric has seen 36 X posts from 29 X users, with an upper bound of 90,385 followers.

RT @SusannahFox: In WE THE SCIENTISTS, @AmyDMarcus chronicles how patients and families band together & overcome obstacles in pursuit of he…

19 Apr 2023

Reply Repost Favourite

In WE THE SCIENTISTS, @AmyDMarcus chronicles how patients and families band together & overcome obstacles in pursuit of health. The threat is not only in their genes. It's in the system. We must do better. Read: https://t.co/JGdFiBjnWv

19 Apr 2023

Reply Repost Favourite

RT @lukebrosen: "Data silos are undermining drug development and failing rare disease patients" https://t.co/yUwbWBePKr

10 Nov 2021

Reply Repost Favourite

RT @lukebrosen: "Data silos are undermining drug development and failing rare disease patients" https://t.co/yUwbWBePKr

10 Nov 2021

Reply Repost Favourite

This page shows the most recent X posts that mention this research output.

Click here to find out how to access more activity, including 32 additional X posts.