The long and winding road: perspectives of people and parents of children with mitochondrial conditions negotiating management after diagnosis

Overview of attention for article published in Orphanet Journal of Rare Diseases, July 2021

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Above-average Attention Score compared to outputs of the same age and source (58th percentile)

So far, Altmetric has seen 7 X posts from 3 X users, with an upper bound of 3,874 followers.

RT @AIHI_MQ: 2/2 "The long and winding road" - this research funded by @AusMito and led by @JanetCLong is the first step to improving acces…

RT @AIHI_MQ: 1/2 We listened to people with #Mito and their families. Most reported no formal advice around mental health or practical assi…

2/2 "The long and winding road" - this research funded by @AusMito and led by @JanetCLong is the first step to improving access to care for #mito patients and their families Read more here: https://t.co/c82dDBllc6 @MCRI_for_kids @JBraithwaite1 #worldmi

1/2 We listened to people with #Mito and their families. Most reported no formal advice around mental health or practical assistance accessing social services. Read more from @MCRI_for_kids @JanetCLong @AusMito @JBraithwaite1 #worldmitodiseaseweek https:

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