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The International development of PROQOL-HCV: An instrument to assess the health-related quality of life of patients treated for Hepatitis C virus

Overview of attention for article published in BMC Infectious Diseases, August 2016
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1 tweeter

Citations

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126 Mendeley
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Title
The International development of PROQOL-HCV: An instrument to assess the health-related quality of life of patients treated for Hepatitis C virus
Published in
BMC Infectious Diseases, August 2016
DOI 10.1186/s12879-016-1771-0
Pubmed ID
Authors

Andrew Richard Armstrong, Susan Elizabeth Herrmann, Olivier Chassany, Christophe Lalanne, Mariliza Henrique Da Silva, Eliana Galano, Patrizia M. Carrieri, Vincent Estellon, Philippe Sogni, Martin Duracinsky

Abstract

Hepatitis C virus (HCV) compromises Health-related Quality of Life (HRQL) with detriments to Physical, Mental and Social health domains. Treatment with interferon and ribavirin is associated with side effects which further impair HRQL. New treatments appear potent, effective and tolerable. However, Patient Reported Outcomes instruments that capture the impact on HRQL for people with hepatitis C are largely non-specific and will be needed in the new treatment era. Therefore, we developed a conceptually valid multidimensional model of HCV-specific quality of life and pilot survey instrument, the Patient Reported Outcome Quality of Life survey for HCV (PROQOL-HCV). HCV patients from France (n = 30), Brazil (n = 20) and Australia (n = 20) were interviewed to investigate HCV-HRQL issues raised in the scientific literature and by treatment specialists. Interviews were recorded, transcribed and translated into English and French. Fifteen content dimensions were derived from the qualitative analysis, refined and fitted to four domains: (1) Physical Health included: fatigue, pain, sleep, sexual impairment and physical activity; (2) Mental Health: psychological distress, psychosocial impact, and cognition; (3) Social Health: support, stigma, social activity, substance use; (4) TREATMENT: management, side effects, and fear of treatment failure. The impact of some dimensions extended beyond their primary domain including: physical activity, cognition, sleep, sexual impairment, and the three treatment dimensions. A bank of 300 items was constructed to reflect patient reports and, following expert review, reduced to a 72-item pilot questionnaire. We present a conceptually valid multidimensional model of HCV-specific quality of life and the pilot survey instrument, PROQOL-HCV. The model is widely inclusive of the experience of hepatitis C and the first to include the treatment dimension.

Twitter Demographics

The data shown below were collected from the profile of 1 tweeter who shared this research output. Click here to find out more about how the information was compiled.

Mendeley readers

The data shown below were compiled from readership statistics for 126 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
United States 1 <1%
Unknown 125 99%

Demographic breakdown

Readers by professional status Count As %
Student > Master 22 17%
Researcher 15 12%
Student > Ph. D. Student 14 11%
Student > Bachelor 12 10%
Student > Postgraduate 9 7%
Other 17 13%
Unknown 37 29%
Readers by discipline Count As %
Psychology 16 13%
Medicine and Dentistry 16 13%
Nursing and Health Professions 13 10%
Pharmacology, Toxicology and Pharmaceutical Science 6 5%
Agricultural and Biological Sciences 5 4%
Other 24 19%
Unknown 46 37%

Attention Score in Context

This research output has an Altmetric Attention Score of 1. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 03 September 2016.
All research outputs
#7,193,788
of 8,320,311 outputs
Outputs from BMC Infectious Diseases
#3,349
of 3,711 outputs
Outputs of similar age
#210,953
of 251,996 outputs
Outputs of similar age from BMC Infectious Diseases
#157
of 210 outputs
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