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Australian families living with rare disease: experiences of diagnosis, health services use and needs for psychosocial support

Overview of attention for article published in Orphanet Journal of Rare Diseases, February 2013
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About this Attention Score

  • In the top 25% of all research outputs scored by Altmetric
  • High Attention Score compared to outputs of the same age (93rd percentile)
  • High Attention Score compared to outputs of the same age and source (95th percentile)

Mentioned by

blogs
1 blog
policy
1 policy source
twitter
12 tweeters
facebook
1 Facebook page

Citations

dimensions_citation
125 Dimensions

Readers on

mendeley
188 Mendeley
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Title
Australian families living with rare disease: experiences of diagnosis, health services use and needs for psychosocial support
Published in
Orphanet Journal of Rare Diseases, February 2013
DOI 10.1186/1750-1172-8-22
Pubmed ID
Authors

Matilda Anderson, Elizabeth J Elliott, Yvonne A Zurynski

Abstract

Families of children living with a rare disease report significant health and social burden, however, few studies have systematically examined family needs by using validated tools to assess the scope and extent of this burden. Our aim was to develop a comprehensive survey to assess health, psychosocial and financial impacts on Australian families caring for a child with a rare disease.

Twitter Demographics

The data shown below were collected from the profiles of 12 tweeters who shared this research output. Click here to find out more about how the information was compiled.

Mendeley readers

The data shown below were compiled from readership statistics for 188 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
United Kingdom 2 1%
United States 1 <1%
Canada 1 <1%
Unknown 184 98%

Demographic breakdown

Readers by professional status Count As %
Student > Ph. D. Student 36 19%
Student > Master 34 18%
Student > Bachelor 18 10%
Researcher 17 9%
Student > Postgraduate 14 7%
Other 37 20%
Unknown 32 17%
Readers by discipline Count As %
Medicine and Dentistry 39 21%
Psychology 26 14%
Biochemistry, Genetics and Molecular Biology 17 9%
Agricultural and Biological Sciences 17 9%
Nursing and Health Professions 14 7%
Other 28 15%
Unknown 47 25%

Attention Score in Context

This research output has an Altmetric Attention Score of 19. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 28 February 2020.
All research outputs
#1,213,486
of 17,094,905 outputs
Outputs from Orphanet Journal of Rare Diseases
#108
of 1,800 outputs
Outputs of similar age
#16,909
of 256,541 outputs
Outputs of similar age from Orphanet Journal of Rare Diseases
#5
of 100 outputs
Altmetric has tracked 17,094,905 research outputs across all sources so far. Compared to these this one has done particularly well and is in the 92nd percentile: it's in the top 10% of all research outputs ever tracked by Altmetric.
So far Altmetric has tracked 1,800 research outputs from this source. They typically receive a little more attention than average, with a mean Attention Score of 7.5. This one has done particularly well, scoring higher than 94% of its peers.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 256,541 tracked outputs that were published within six weeks on either side of this one in any source. This one has done particularly well, scoring higher than 93% of its contemporaries.
We're also able to compare this research output to 100 others from the same source and published within six weeks on either side of this one. This one has done particularly well, scoring higher than 95% of its contemporaries.