Families living with rare diseases have traditionally received little attention from health authorities, clinicians and researchers it has been well reported - and the same thing happening over and over again #RareDiseases #Raredisorders https://t.co/xp
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Australian families living with rare disease: experiences (2013) https://t.co/FZ4MwdC7ao @RareDiseasesGr #rarediseases
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Family needs, health, psychosocial and financial impact on Australian families caring for a child with rare disease > http://t.co/rpCn8EuTFy
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Family needs, health, psychosocial and financial impact on Australian families caring for a child with rare disease > http://t.co/rpCn8EuTFy