The road to successful people-centric research in rare diseases: the web-based case study of the Immunology and Congenital Disorders of Glycosylation questionnaire (ImmunoCDGQ)

Overview of attention for article published in Orphanet Journal of Rare Diseases, March 2022

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Above-average Attention Score compared to outputs of the same age (57th percentile)
Good Attention Score compared to outputs of the same age and source (65th percentile)

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So far, Altmetric has seen 4 X posts from 4 X users, with an upper bound of 31,180 followers.

#CDGOverview 🚀NEWS IN CDG RESEARCH! Thanks to your help we recently developed a study! 👉 The abstract is available here: https://t.co/mxsXGDsnvM 👉Ask for the full article at: https://t.co/1YVpKTUJI2 TOGETHER, we can create SOLUTIONS! https://t.co/pX

23 Apr 2022

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ImmunoCDGQ d case study of the Immunology and Congenital Disorders of Glycosylation questionnaire (ImmunoCDGQ) https://t.co/j02FutNanx https://t.co/nJ4F4xNzUQ

08 Apr 2022

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The road to successful people-centric research in rare diseases: the web-based case study of the Immunology and Congenital Disorders of Glycosylation questionnaire (ImmunoCDGQ) https://t.co/dHLP9KjYAQ

30 Mar 2022

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25 Mar 2022

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