The national economic burden of rare disease in the United States in 2019

Overview of attention for article published in Orphanet Journal of Rare Diseases, April 2022

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In the top 25% of all research outputs scored by Altmetric
High Attention Score compared to outputs of the same age (92nd percentile)
High Attention Score compared to outputs of the same age and source (95th percentile)

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Affordability of Orphan Drugs Hinges on Global Collaboration

Pharmacy Times, 06 Mar 2023

Rare diseases are diseases that affect 6.5 to 10 out of every 10,000 people; however, there are nearly 11,000 known rare…

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