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RT @rarediseasesint: "Medicals facts need to be translated into specific educational consequences relevant to each individual living with a…
RT @rarediseasesint: "Medicals facts need to be translated into specific educational consequences relevant to each individual living with a…
"Medicals facts need to be translated into specific educational consequences relevant to each individual living with a #rarediseases"👏👏Gunilla Jaeger, Psychologist, Agrenska Foundation. Webinar with @IBE_UNESCO Published paper @Orphanet💡 target="_blank" href="https://t.co/HPga">https://t.co/HPga
Consequences of rare diagnoses for education and daily life: development of an observation instrument https://t.co/o9kONSiP9D