Title |
Gaining the PROMIS perspective from children with nephrotic syndrome: a Midwest pediatric nephrology consortium study
|
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Published in |
Health and Quality of Life Outcomes, March 2013
|
DOI | 10.1186/1477-7525-11-30 |
Pubmed ID | |
Authors |
Debbie S Gipson, David T Selewski, Susan F Massengill, Larysa Wickman, Kassandra L Messer, Emily Herreshoff, Corinna Bowers, Maria E Ferris, John D Mahan, Larry A Greenbaum, Jackie MacHardy, Gaurav Kapur, Deepa H Chand, Jens Goebel, Gina Marie Barletta, Denis Geary, David B Kershaw, Cynthia G Pan, Rasheed Gbadegesin, Guillermo Hidalgo, Jerome C Lane, Jeffrey D Leiser, Brett W Plattner, Peter X Song, David Thissen, Yang Liu, Heather E Gross, Darren A DeWalt |
Abstract |
Nephrotic syndrome (NS) represents a common disease in pediatric nephrology typified by a relapsing and remitting course and characterized by the presence of edema that can significantly affect the health-related quality of life in children and adolescents. The PROMIS pediatric measures were constructed to be publically available, efficient, precise, and valid across a variety of diseases to assess patient reports of symptoms and quality of life. This study was designed to evaluate the ability of children and adolescents with NS to complete the PROMIS assessment via computer and to initiate validity assessments of the short forms and full item banks in pediatric NS. Successful measurement of patient reported outcomes will contribute to our understanding of the impact of NS on children and adolescents. |
X Demographics
Geographical breakdown
Country | Count | As % |
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United States | 2 | 50% |
Unknown | 2 | 50% |
Demographic breakdown
Type | Count | As % |
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Members of the public | 3 | 75% |
Science communicators (journalists, bloggers, editors) | 1 | 25% |
Mendeley readers
Geographical breakdown
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Japan | 1 | 1% |
Italy | 1 | 1% |
Unknown | 86 | 98% |
Demographic breakdown
Readers by professional status | Count | As % |
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Student > Master | 23 | 26% |
Student > Ph. D. Student | 11 | 13% |
Researcher | 10 | 11% |
Other | 5 | 6% |
Student > Doctoral Student | 5 | 6% |
Other | 19 | 22% |
Unknown | 15 | 17% |
Readers by discipline | Count | As % |
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Medicine and Dentistry | 25 | 28% |
Psychology | 13 | 15% |
Nursing and Health Professions | 11 | 13% |
Social Sciences | 4 | 5% |
Computer Science | 4 | 5% |
Other | 11 | 13% |
Unknown | 20 | 23% |