People with Rare Diseases Need Better Healthcare
Psychology Today,
By Kathleen Bogart and Amanda Hemmesch Ask nearly anyone in America whether they have experienced challenges with our…
Mauvaise qualité de vie liée à la santé, nombreux fardeaux liés aux maladies rares, selon une étude
Nouvelles du monde,
Les personnes aux États-Unis avec maladies rares ont une mauvaise qualité de vie liée à la santé (HRQOL) et une forte…
Poor Health-Related Quality of Life, Many Burdens in Rare Diseases, Study Finds
AJMC,
People with rare diseases experience significant diagnostic delays, high out-of-pocket costs, travel burden for specialty care…
People with rare diseases have poor health-related quality of life, OSU study finds
The World,
People with rare diseases frequently wait years for a proper diagnosis, have to travel long distances for specialty care and…