Title |
Development and preliminary testing of the psychosocial adjustment to hereditary diseases scale
|
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Published in |
BMC Psychology, April 2013
|
DOI | 10.1186/2050-7283-1-7 |
Pubmed ID | |
Authors |
Kathy E Watkins, Christine Y Way, Deborah M Gregory, Holly M LeDrew, Valerie C Ludlow, Mary Jane Esplen, Jeffrey J Dowden, Janet E Cox, G William N Fitzgerald, Patrick S Parfrey |
Abstract |
The presence of Lynch syndrome (LS) can bring a lifetime of uncertainty to an entire family as members adjust to living with a high lifetime cancer risk. The research base on how individuals and families adjust to genetic-linked diseases following predictive genetic testing has increased our understanding of short-term impacts but gaps continue to exist in knowledge of important factors that facilitate or impede long-term adjustment. The failure of existing scales to detect psychosocial adjustment challenges in this population has led researchers to question the adequate sensitivity of these instruments. Furthermore, we have limited insight into the role of the family in promoting adjustment. |
X Demographics
Geographical breakdown
Country | Count | As % |
---|---|---|
Unknown | 2 | 100% |
Demographic breakdown
Type | Count | As % |
---|---|---|
Practitioners (doctors, other healthcare professionals) | 1 | 50% |
Scientists | 1 | 50% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
Unknown | 10 | 100% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Student > Ph. D. Student | 2 | 20% |
Student > Postgraduate | 2 | 20% |
Student > Master | 2 | 20% |
Student > Bachelor | 1 | 10% |
Other | 1 | 10% |
Other | 0 | 0% |
Unknown | 2 | 20% |
Readers by discipline | Count | As % |
---|---|---|
Medicine and Dentistry | 5 | 50% |
Psychology | 2 | 20% |
Biochemistry, Genetics and Molecular Biology | 1 | 10% |
Unknown | 2 | 20% |