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Experiences of health care in women with Peripartum Cardiomyopathy in Sweden: a qualitative interview study

Overview of attention for article published in BMC Pregnancy and Childbirth, December 2016
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  • Above-average Attention Score compared to outputs of the same age (53rd percentile)
  • Average Attention Score compared to outputs of the same age and source

Mentioned by

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3 X users
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2 Facebook pages

Citations

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12 Dimensions

Readers on

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64 Mendeley
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Title
Experiences of health care in women with Peripartum Cardiomyopathy in Sweden: a qualitative interview study
Published in
BMC Pregnancy and Childbirth, December 2016
DOI 10.1186/s12884-016-1178-3
Pubmed ID
Authors

Harshida Patel, Maria Schaufelberger, Cecily Begley, Marie Berg

Abstract

Peripartum cardiomyopathy is often associated with severe heart failure occurring towards the end of pregnancy or in the months following birth with debilitating, exhausting and frightening symptoms requiring person-centered care. The aim of this study was to explore women's experiences of health care while being diagnosed with peripartum cardiomyopathy. Qualitative interviews were conducted with 19 women with peripartum cardiomyopathy in Sweden, following consent. Data were analysed using qualitative content analysis. Confirmability was ensured by peer-debriefing, and an audit trail was kept to establish the credibility of the study. The main theme in the experience of health care was, 'Exacerbated Suffering', expressed in three subthemes; 'not being cared about', 'not being cared for' and 'not feeling secure.' The suffering was present in relation to the illness with failing health symptoms, but most of all in relation to not being taken seriously and adequately cared for by healthcare professionals. Women felt they were on an assembly line in midwives' routine work where knowledge about peripartum cardiomyopathy was lacking and they showed distrust and dissatisfaction with care related to negligence and indifference experienced from healthcare professionals. Feelings of being alone and lost were prominent and related to a sense of insecurity, distress and uneasiness. This study shows a knowledge gap of peripartum cardiomyopathy in maternity care personnel. This is alarming as the deprecation of symptoms and missed diagnosis of peripartum cardiomyopathy can lead to life-threatening consequences. To prompt timely diagnosis and avoid unnecessary suffering it is important to listen seriously to, and respect, women's narratives and act on expressions of symptoms of peripartum cardiomyopathy, even those overlapping normal pregnancy symptoms.

X Demographics

X Demographics

The data shown below were collected from the profiles of 3 X users who shared this research output. Click here to find out more about how the information was compiled.
Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 64 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Unknown 64 100%

Demographic breakdown

Readers by professional status Count As %
Student > Master 9 14%
Unspecified 7 11%
Researcher 6 9%
Student > Ph. D. Student 5 8%
Other 4 6%
Other 13 20%
Unknown 20 31%
Readers by discipline Count As %
Medicine and Dentistry 15 23%
Nursing and Health Professions 13 20%
Unspecified 7 11%
Psychology 3 5%
Social Sciences 2 3%
Other 3 5%
Unknown 21 33%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 3. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 19 December 2016.
All research outputs
#12,785,742
of 22,912,409 outputs
Outputs from BMC Pregnancy and Childbirth
#2,286
of 4,213 outputs
Outputs of similar age
#195,383
of 419,640 outputs
Outputs of similar age from BMC Pregnancy and Childbirth
#56
of 81 outputs
Altmetric has tracked 22,912,409 research outputs across all sources so far. This one is in the 43rd percentile – i.e., 43% of other outputs scored the same or lower than it.
So far Altmetric has tracked 4,213 research outputs from this source. They typically receive more attention than average, with a mean Attention Score of 8.8. This one is in the 45th percentile – i.e., 45% of its peers scored the same or lower than it.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 419,640 tracked outputs that were published within six weeks on either side of this one in any source. This one has gotten more attention than average, scoring higher than 53% of its contemporaries.
We're also able to compare this research output to 81 others from the same source and published within six weeks on either side of this one. This one is in the 30th percentile – i.e., 30% of its contemporaries scored the same or lower than it.