Title |
A Disease Register for ME/CFS: Report of a Pilot Study
|
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Published in |
BMC Research Notes, May 2011
|
DOI | 10.1186/1756-0500-4-139 |
Pubmed ID | |
Authors |
Derek Pheby, Eliana Lacerda, Luis Nacul, Maria de Lourdes Drachler, Peter Campion, Amanda Howe, Fiona Poland, Monica Curran, Valerie Featherstone, Shagufta Fayyaz, Dikaios Sakellariou, José Carlos de Carvalho Leite |
Abstract |
The ME/CFS Disease Register is one of six subprojects within the National ME/CFS Observatory, a research programme funded by the Big Lottery Fund and sponsored by Action for ME. A pilot study in East Anglia, East Yorkshire, and London aimed to address the problem of identifying representative groups of subjects for research, in order to be able to draw conclusions applicable to the whole ME/CFS population.While not aiming for comprehensive population coverage, this pilot register sought to recruit participants with ME/CFS in an unbiased way from a large population base. Those recruited are constituting a cohort for long-term follow-up to shed light on prognosis, and a sampling frame for other studies. |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
Korea, Republic of | 1 | 4% |
Unknown | 25 | 96% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Other | 4 | 15% |
Lecturer > Senior Lecturer | 3 | 12% |
Student > Doctoral Student | 3 | 12% |
Researcher | 2 | 8% |
Professor > Associate Professor | 2 | 8% |
Other | 7 | 27% |
Unknown | 5 | 19% |
Readers by discipline | Count | As % |
---|---|---|
Medicine and Dentistry | 9 | 35% |
Nursing and Health Professions | 2 | 8% |
Social Sciences | 2 | 8% |
Psychology | 2 | 8% |
Environmental Science | 1 | 4% |
Other | 2 | 8% |
Unknown | 8 | 31% |