Review of 11 national policies for rare diseases in the context of key patient needs

Overview of attention for article published in Orphanet Journal of Rare Diseases, March 2017

Altmetric Badge

About this Attention Score

In the top 5% of all research outputs scored by Altmetric
High Attention Score compared to outputs of the same age (96th percentile)
High Attention Score compared to outputs of the same age and source (95th percentile)

Mentioned by

news: 4 news outlets
twitter: 56 X users

facebook: 5 Facebook pages

Citations

dimensions_citation: 133 Dimensions

Readers on

mendeley: 265 Mendeley

Summary News X Facebook Dimensions citations

So far, Altmetric has seen 4 news stories from 4 outlets.

Shaping a data economy

Business & Financial Times, 19 Jan 2021

MURAT SONMEZ is the head of the Centre for the Fourth Industrial Revolution Network and managing director of the World Economic…

Proof of Concept for Sharing Rare Disease Data Across Borders Is Crucial Step for Diagnoses

Modern Diplomacy, 03 Aug 2020

Those who contracted COVID-19 are experiencing what it’s like to have a condition that is difficult to diagnose without clear…

News story from Eurasia Review on Thursday 30 July 2020

Eurasia Review, 30 Jul 2020

MIL-OSI Economics: Proof of Concept for Sharing Rare Disease Data Across Borders Is Crucial...

Foreign Affairs New Zealand, 30 Jul 2020

Source: World Economic Forum Amanda Russo, Public Engagement, +41 79 265 8773, [email protected] The discovery of diagnoses and…

This page shows the most recent news stories that mention this research output.

Click here to find out how to access more activity.