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Perseverance time of informal caregivers for people with dementia: construct validity, responsiveness and predictive validity

Overview of attention for article published in Alzheimer's Research & Therapy, April 2017
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Title
Perseverance time of informal caregivers for people with dementia: construct validity, responsiveness and predictive validity
Published in
Alzheimer's Research & Therapy, April 2017
DOI 10.1186/s13195-017-0251-0
Pubmed ID
Authors

Anke Richters, René J. F. Melis, N. Job van Exel, Marcel G. M. Olde Rikkert, Marjolein A. van der Marck

Abstract

Informal care is essential for many people with dementia (PwD), but it often results in a considerable burden for the caregiver. The perseverance time instrument integrates the aspect of perceived burden with the caregiver's capacity to cope with the burden, in contrast to most available instruments, which measure solely the burden of caregiving. The aim of this study was to extend insight into psychometric properties of the perseverance time instrument, specifically the construct validity, responsiveness, and predictive validity, within the population of informal caregivers for PwD. Data from two studies among informal caregivers of community-dwelling PwD in the Netherlands were used. The first study included 198 caregivers from a single region in the Netherlands and lasted 1 year. The second was a cross-sectional nationwide study with 166 caregivers for PwD. Questionnaires of both studies included questions regarding demographics and informal care, perseverance time, and other informal caregiver outcomes (Caregiver Strain Index, Self-rated Burden scale, Care-related Quality of Life instrument, and visual analogue scale health scores). Construct validity and responsiveness were assessed using a hypothesis-testing approach. The predictive validity of demographic characteristics and perseverance time for living situation after 1 year (living at home, institutionalized, or deceased) was assessed with multivariable multinomial regression. All but one of the hypotheses regarding construct validity were met. Three of five hypotheses regarding responsiveness were met. Perseverance time scores at baseline were associated with living situation after 1 year (p < 0.01), unlike age, sex, and relationship with PwD. Perseverance time strongly increased predictive power for living situation after 1 year (c-index between 0.671 and 0.775) in addition to demographic characteristics. This study supports previous findings regarding the construct validity of the perseverance time instrument and adds new evidence of good construct validity, responsiveness, and predictive validity. The predictive power of perseverance time scores for living situation exceeds the predictive power of other burden measures and indicates informal care as an important factor for maintaining the patient at home.

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Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 78 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Unknown 78 100%

Demographic breakdown

Readers by professional status Count As %
Student > Bachelor 11 14%
Researcher 10 13%
Student > Doctoral Student 9 12%
Student > Master 9 12%
Student > Ph. D. Student 8 10%
Other 6 8%
Unknown 25 32%
Readers by discipline Count As %
Nursing and Health Professions 17 22%
Psychology 9 12%
Medicine and Dentistry 8 10%
Computer Science 3 4%
Economics, Econometrics and Finance 2 3%
Other 13 17%
Unknown 26 33%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 1. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 05 April 2017.
All research outputs
#15,452,475
of 22,962,258 outputs
Outputs from Alzheimer's Research & Therapy
#1,127
of 1,238 outputs
Outputs of similar age
#193,982
of 308,981 outputs
Outputs of similar age from Alzheimer's Research & Therapy
#23
of 24 outputs
Altmetric has tracked 22,962,258 research outputs across all sources so far. This one is in the 22nd percentile – i.e., 22% of other outputs scored the same or lower than it.
So far Altmetric has tracked 1,238 research outputs from this source. They typically receive a lot more attention than average, with a mean Attention Score of 26.0. This one is in the 6th percentile – i.e., 6% of its peers scored the same or lower than it.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 308,981 tracked outputs that were published within six weeks on either side of this one in any source. This one is in the 28th percentile – i.e., 28% of its contemporaries scored the same or lower than it.
We're also able to compare this research output to 24 others from the same source and published within six weeks on either side of this one. This one is in the 4th percentile – i.e., 4% of its contemporaries scored the same or lower than it.