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Wow, what an interesting read. #undiagnosed #raredisease #UND https://t.co/4ymDT0TfSv
Wow, what an interesting read. #undiagnosed #raredisease #UND https://t.co/4ymDT0TfSv
A window into living with an undiagnosed disease: illness narratives from the Undiagnosed Diseases Network - PMC https://t.co/GwouMf5OUp
According to research about the emotional & financial stress relating to rare diseases: “Parents of pediatric patients continue to struggle and make their way through the ‘diagnostic odyssey’ of repeated clinical consultations and testing...” Learn mor