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The European Union Committee of Experts on Rare Diseases: three productive years at the service of the rare disease community

Overview of attention for article published in Orphanet Journal of Rare Diseases, February 2014
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About this Attention Score

  • In the top 25% of all research outputs scored by Altmetric
  • High Attention Score compared to outputs of the same age (93rd percentile)
  • High Attention Score compared to outputs of the same age and source (95th percentile)

Mentioned by

blogs
3 blogs
twitter
10 X users
facebook
1 Facebook page

Citations

dimensions_citation
46 Dimensions

Readers on

mendeley
49 Mendeley
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Title
The European Union Committee of Experts on Rare Diseases: three productive years at the service of the rare disease community
Published in
Orphanet Journal of Rare Diseases, February 2014
DOI 10.1186/1750-1172-9-30
Pubmed ID
Authors

Ségolène Aymé, Charlotte Rodwell

Abstract

The European Union Committee of Experts on Rare Diseases was entrusted with aiding the European Commission in a number of tasks, ranging from the monitoring of initiatives, to recommending improvements and actions to be pursued in the future, in addition to helping strengthen liaison at both European and International levels in the field of rare diseases. The three-year mandate of the EUCERD drew to a close in July 2013 with an impressive record. The EUCERD has laid down the foundations for future work so as to continue to advance in the key areas that have been identified as of interest for the rare disease community at large: centres of expertise, European Reference Networks, patient registries and databases, newborn screening, and indicators for national rare disease plans/strategies. The work of the Committee should now be continued by the newly formed European Commission Expert Group on Rare Diseases.

X Demographics

X Demographics

The data shown below were collected from the profiles of 10 X users who shared this research output. Click here to find out more about how the information was compiled.
Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 49 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Spain 1 2%
Unknown 48 98%

Demographic breakdown

Readers by professional status Count As %
Student > Ph. D. Student 9 18%
Student > Master 8 16%
Researcher 7 14%
Other 6 12%
Professor > Associate Professor 3 6%
Other 8 16%
Unknown 8 16%
Readers by discipline Count As %
Medicine and Dentistry 20 41%
Biochemistry, Genetics and Molecular Biology 5 10%
Nursing and Health Professions 4 8%
Social Sciences 4 8%
Psychology 2 4%
Other 6 12%
Unknown 8 16%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 25. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 18 December 2015.
All research outputs
#1,516,243
of 25,374,647 outputs
Outputs from Orphanet Journal of Rare Diseases
#159
of 3,105 outputs
Outputs of similar age
#15,037
of 235,666 outputs
Outputs of similar age from Orphanet Journal of Rare Diseases
#2
of 42 outputs
Altmetric has tracked 25,374,647 research outputs across all sources so far. Compared to these this one has done particularly well and is in the 94th percentile: it's in the top 10% of all research outputs ever tracked by Altmetric.
So far Altmetric has tracked 3,105 research outputs from this source. They typically receive more attention than average, with a mean Attention Score of 8.2. This one has done particularly well, scoring higher than 94% of its peers.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 235,666 tracked outputs that were published within six weeks on either side of this one in any source. This one has done particularly well, scoring higher than 93% of its contemporaries.
We're also able to compare this research output to 42 others from the same source and published within six weeks on either side of this one. This one has done particularly well, scoring higher than 95% of its contemporaries.