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A past with uncertainty, a future with hope – rare disease day 2014 from a USA perspective

Overview of attention for article published in Orphanet Journal of Rare Diseases, January 2014
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About this Attention Score

  • In the top 25% of all research outputs scored by Altmetric
  • High Attention Score compared to outputs of the same age (89th percentile)

Mentioned by

blogs
1 blog
twitter
7 tweeters

Citations

dimensions_citation
1 Dimensions

Readers on

mendeley
26 Mendeley
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Title
A past with uncertainty, a future with hope – rare disease day 2014 from a USA perspective
Published in
Orphanet Journal of Rare Diseases, January 2014
DOI 10.1186/1750-1172-9-31
Pubmed ID
Authors

Stephen C Groft

Abstract

We reflect on the worldwide research accomplishments, orphan product approvals, and the commitments by the rare diseases community. Major collaborative efforts by the public and private sectors increased interventions and diagnostics for rare diseases. We marvel at the impact of safe and effective treatments when they become available. Hope remains for the rare diseases community with a renewed commitment and acceptance of collaborative public-private partnerships of government translational research and regulatory programs, the biopharmaceutical, devices and diagnostics industries, academic investigators, and patient advocacy groups. The global rare diseases community remains strong and responsive to the voices and needs of patients, families, and clinicians awaiting diagnosis and treatment for their disease. We anticipate even greater successes in 2014 to reflect on Rare Disease Day 2015.

Twitter Demographics

The data shown below were collected from the profiles of 7 tweeters who shared this research output. Click here to find out more about how the information was compiled.

Mendeley readers

The data shown below were compiled from readership statistics for 26 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Spain 1 4%
United States 1 4%
Brazil 1 4%
Unknown 23 88%

Demographic breakdown

Readers by professional status Count As %
Student > Ph. D. Student 5 19%
Researcher 3 12%
Student > Master 3 12%
Student > Doctoral Student 2 8%
Librarian 2 8%
Other 7 27%
Unknown 4 15%
Readers by discipline Count As %
Medicine and Dentistry 10 38%
Social Sciences 4 15%
Nursing and Health Professions 3 12%
Psychology 1 4%
Business, Management and Accounting 1 4%
Other 1 4%
Unknown 6 23%

Attention Score in Context

This research output has an Altmetric Attention Score of 14. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 19 September 2014.
All research outputs
#2,069,670
of 21,364,317 outputs
Outputs from Orphanet Journal of Rare Diseases
#240
of 2,380 outputs
Outputs of similar age
#21,934
of 201,971 outputs
Outputs of similar age from Orphanet Journal of Rare Diseases
#1
of 4 outputs
Altmetric has tracked 21,364,317 research outputs across all sources so far. Compared to these this one has done particularly well and is in the 90th percentile: it's in the top 10% of all research outputs ever tracked by Altmetric.
So far Altmetric has tracked 2,380 research outputs from this source. They typically receive a little more attention than average, with a mean Attention Score of 7.3. This one has done well, scoring higher than 89% of its peers.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 201,971 tracked outputs that were published within six weeks on either side of this one in any source. This one has done well, scoring higher than 89% of its contemporaries.
We're also able to compare this research output to 4 others from the same source and published within six weeks on either side of this one. This one has scored higher than all of them