Title |
Emergence and evolution of social self-management of Parkinson’s disease: study protocol for a 3-year prospective cohort study
|
---|---|
Published in |
BMC Neurology, May 2014
|
DOI | 10.1186/1471-2377-14-95 |
Pubmed ID | |
Authors |
Linda Tickle-Degnen, Marie Saint-Hilaire, Cathi A Thomas, Barbara Habermann, Linda S Sprague Martinez, Norma Terrin, Farzad Noubary, Elena N Naumova |
Abstract |
Parkinson's disease affects facial, vocal and trunk muscles. As symptoms progress, facial expression becomes masked, limiting the person's ability to communicate emotions and intentions to others. As people with the disease live and reside in their homes longer, the burden of caregiving is unmitigated by social and emotional rewards provided by an expressive individual. Little is known about how adults living with Parkinson's disease manage their social lives and how an inability to be emotionally expressive can affect social connections and health. Because social networks have been shown to be crucial to the overall well-being of people living with chronic diseases, research is needed on how expressive capacity affects life trajectories and health. |
X Demographics
Geographical breakdown
Country | Count | As % |
---|---|---|
Chile | 2 | 67% |
Unknown | 1 | 33% |
Demographic breakdown
Type | Count | As % |
---|---|---|
Members of the public | 3 | 100% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
United Kingdom | 2 | 2% |
Chile | 1 | <1% |
Sweden | 1 | <1% |
Peru | 1 | <1% |
Unknown | 116 | 96% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Student > Master | 19 | 16% |
Researcher | 16 | 13% |
Student > Ph. D. Student | 16 | 13% |
Student > Doctoral Student | 15 | 12% |
Student > Bachelor | 10 | 8% |
Other | 19 | 16% |
Unknown | 26 | 21% |
Readers by discipline | Count | As % |
---|---|---|
Medicine and Dentistry | 26 | 21% |
Nursing and Health Professions | 17 | 14% |
Psychology | 17 | 14% |
Social Sciences | 9 | 7% |
Neuroscience | 6 | 5% |
Other | 18 | 15% |
Unknown | 28 | 23% |