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Social/economic costs and health-related quality of life in patients with spinal muscular atrophy (SMA) in Spain

Overview of attention for article published in Orphanet Journal of Rare Diseases, August 2017
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About this Attention Score

  • Good Attention Score compared to outputs of the same age (68th percentile)
  • Good Attention Score compared to outputs of the same age and source (75th percentile)

Mentioned by

policy
1 policy source
twitter
3 tweeters

Citations

dimensions_citation
47 Dimensions

Readers on

mendeley
132 Mendeley
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Title
Social/economic costs and health-related quality of life in patients with spinal muscular atrophy (SMA) in Spain
Published in
Orphanet Journal of Rare Diseases, August 2017
DOI 10.1186/s13023-017-0695-0
Pubmed ID
Authors

Julio López-Bastida, Luz María Peña-Longobardo, Isaac Aranda-Reneo, Eduardo Tizzano, Mark Sefton, Juan Oliva-Moreno

Abstract

The aim of this study was to determine the economic burden and health-related quality of life (HRQOL) of patients with Spinal Muscular Atrophy (SMA) and their caregivers in Spain. This was a cross-sectional and retrospective study of patients diagnosed with SMA in Spain. We adopted a bottom up, prevalence approach design to study patients with SMA. The patient's caregivers completed an anonymous questionnaire regarding their socio-demographic characteristics, use of healthcare services and non-healthcare services. Costs were estimated from a societal perspective (including healthcare costs and non-healthcare costs), and health-related quality of life (HRQOL) was assessed using the EQ-5D questionnaire. The main caregivers also answered a questionnaire on their characteristics and on their HRQOL. A total of 81 caregivers of patients with different subtypes of SMA completed the questionnaire. Based on the reference unitary prices for 2014, the average annual costs per patient were € 33,721. Direct healthcare costs were € 10,882 (representing around 32.3% of the total cost) and the direct non-healthcare costs were € 22,839 (67.7% of the total cost). The mean EQ-5D social tariff score for patients was 0.16, and the mean score of the EQ-5D visual analogue scale was 54. The mean EQ-5D social tariff score for caregivers was 0.49 and their mean score on the EQ-5D visual analogue scale was 69. The results highlight the burden that SMA has in terms of costs and decreased HRQOL, not only for patients but also for their caregivers. In particular, the substantial social/economic burden is mostly attributable to the high direct non-healthcare costs.

Twitter Demographics

The data shown below were collected from the profiles of 3 tweeters who shared this research output. Click here to find out more about how the information was compiled.

Mendeley readers

The data shown below were compiled from readership statistics for 132 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Unknown 132 100%

Demographic breakdown

Readers by professional status Count As %
Other 24 18%
Researcher 18 14%
Student > Master 15 11%
Student > Bachelor 13 10%
Student > Ph. D. Student 9 7%
Other 20 15%
Unknown 33 25%
Readers by discipline Count As %
Medicine and Dentistry 28 21%
Pharmacology, Toxicology and Pharmaceutical Science 16 12%
Nursing and Health Professions 12 9%
Economics, Econometrics and Finance 7 5%
Biochemistry, Genetics and Molecular Biology 6 5%
Other 25 19%
Unknown 38 29%

Attention Score in Context

This research output has an Altmetric Attention Score of 5. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 04 June 2019.
All research outputs
#4,464,504
of 16,427,352 outputs
Outputs from Orphanet Journal of Rare Diseases
#556
of 1,755 outputs
Outputs of similar age
#84,620
of 275,045 outputs
Outputs of similar age from Orphanet Journal of Rare Diseases
#3
of 12 outputs
Altmetric has tracked 16,427,352 research outputs across all sources so far. This one has received more attention than most of these and is in the 72nd percentile.
So far Altmetric has tracked 1,755 research outputs from this source. They typically receive a little more attention than average, with a mean Attention Score of 7.4. This one has gotten more attention than average, scoring higher than 67% of its peers.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 275,045 tracked outputs that were published within six weeks on either side of this one in any source. This one has gotten more attention than average, scoring higher than 68% of its contemporaries.
We're also able to compare this research output to 12 others from the same source and published within six weeks on either side of this one. This one has done well, scoring higher than 75% of its contemporaries.