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Psychoactive substances as a last resort—a qualitative study of self-treatment of migraine and cluster headaches

Overview of attention for article published in Harm Reduction Journal, September 2017
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About this Attention Score

  • In the top 5% of all research outputs scored by Altmetric
  • Among the highest-scoring outputs from this source (#18 of 855)
  • High Attention Score compared to outputs of the same age (98th percentile)

Mentioned by

news
10 news outlets
blogs
4 blogs
twitter
104 tweeters
patent
4 patents
facebook
2 Facebook pages

Citations

dimensions_citation
34 Dimensions

Readers on

mendeley
156 Mendeley
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Title
Psychoactive substances as a last resort—a qualitative study of self-treatment of migraine and cluster headaches
Published in
Harm Reduction Journal, September 2017
DOI 10.1186/s12954-017-0186-6
Pubmed ID
Authors

Martin Andersson, Mari Persson, Anette Kjellgren

Abstract

Treatment resistant cluster headache and migraine patients are exploring alternative treatments online. The aim of this study was to improve comprehension regarding the use of non-established or alternative pharmacological treatments used by sufferers of cluster headaches and migraines. A qualitative thematic analysis of the users' own accounts presented in online forum discussions were conducted. The forum boards https://shroomery.org/ , http://bluelight.org , and https://clusterbusters.org/ met the inclusion criteria and were used for the study. The analysis resulted in six themes: a desperate need for effective treatments; the role of the forum-finding alternative treatments and community support; alternative treatment substances; dosage and regimens; effects and treatment results; and adverse effects. The results provide an insight into why, how, and by which substances and methods sufferers seek relief from cluster headache and migraines. These patients are in a desperate and vulnerable situation, and illicit psychoactive substances are often considered a last resort. There appeared to be little or no interest in psychoactive effects per se as these were rather tolerated or avoided by using sub-psychoactive doses. Primarily, psilocybin, lysergic acid diethylamide, and related psychedelic tryptamines were reportedly effective for both prophylactic and acute treatment of cluster headache and migraines. Treatment results with cannabis were more unpredictable. No severe adverse events were reported, but it was observed how desperation sometimes spurred risky behavior when obtaining and testing various treatment alternatives. The forum discourse mainly revolved around maximizing treatment results and minimizing potential harms.

Twitter Demographics

The data shown below were collected from the profiles of 104 tweeters who shared this research output. Click here to find out more about how the information was compiled.

Mendeley readers

The data shown below were compiled from readership statistics for 156 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Unknown 156 100%

Demographic breakdown

Readers by professional status Count As %
Student > Bachelor 36 23%
Researcher 23 15%
Student > Master 17 11%
Student > Doctoral Student 11 7%
Student > Ph. D. Student 10 6%
Other 23 15%
Unknown 36 23%
Readers by discipline Count As %
Medicine and Dentistry 35 22%
Psychology 22 14%
Neuroscience 13 8%
Pharmacology, Toxicology and Pharmaceutical Science 11 7%
Nursing and Health Professions 6 4%
Other 29 19%
Unknown 40 26%

Attention Score in Context

This research output has an Altmetric Attention Score of 206. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 25 June 2022.
All research outputs
#137,773
of 21,436,792 outputs
Outputs from Harm Reduction Journal
#18
of 855 outputs
Outputs of similar age
#3,540
of 290,637 outputs
Outputs of similar age from Harm Reduction Journal
#1
of 1 outputs
Altmetric has tracked 21,436,792 research outputs across all sources so far. Compared to these this one has done particularly well and is in the 99th percentile: it's in the top 5% of all research outputs ever tracked by Altmetric.
So far Altmetric has tracked 855 research outputs from this source. They typically receive a lot more attention than average, with a mean Attention Score of 28.1. This one has done particularly well, scoring higher than 97% of its peers.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 290,637 tracked outputs that were published within six weeks on either side of this one in any source. This one has done particularly well, scoring higher than 98% of its contemporaries.
We're also able to compare this research output to 1 others from the same source and published within six weeks on either side of this one. This one has scored higher than all of them