Title |
Understanding what matters most to people with multiple myeloma: a qualitative study of views on quality of life
|
---|---|
Published in |
BMC Cancer, July 2014
|
DOI | 10.1186/1471-2407-14-496 |
Pubmed ID | |
Authors |
Thomas R Osborne, Christina Ramsenthaler, Susanne de Wolf-Linder, Stephen A Schey, Richard J Siegert, Polly M Edmonds, Irene J Higginson |
Abstract |
Multiple myeloma is an incurable haematological cancer that affects physical, psychological and social domains of quality of life (QOL). Treatment decisions are increasingly guided by QOL issues, creating a need to monitor QOL within clinical practice. The development of myeloma-specific QOL questionnaires has been limited by a paucity of research to fully characterise QOL in this group. Aims of the present study are to (1) explore the issues important to QOL from the perspective of people with multiple myeloma, and (2) explore the views of patients and clinical staff on existing QOL questionnaires and their use in clinical practice. |
X Demographics
Geographical breakdown
Country | Count | As % |
---|---|---|
United Kingdom | 4 | 21% |
United States | 3 | 16% |
Australia | 2 | 11% |
New Zealand | 1 | 5% |
Portugal | 1 | 5% |
Ireland | 1 | 5% |
Mexico | 1 | 5% |
Netherlands | 1 | 5% |
Unknown | 5 | 26% |
Demographic breakdown
Type | Count | As % |
---|---|---|
Members of the public | 13 | 68% |
Scientists | 4 | 21% |
Practitioners (doctors, other healthcare professionals) | 2 | 11% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
United Kingdom | 1 | <1% |
Canada | 1 | <1% |
Unknown | 131 | 98% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Other | 19 | 14% |
Student > Master | 18 | 14% |
Student > Ph. D. Student | 17 | 13% |
Researcher | 13 | 10% |
Student > Bachelor | 11 | 8% |
Other | 27 | 20% |
Unknown | 28 | 21% |
Readers by discipline | Count | As % |
---|---|---|
Medicine and Dentistry | 32 | 24% |
Nursing and Health Professions | 18 | 14% |
Psychology | 17 | 13% |
Social Sciences | 9 | 7% |
Unspecified | 5 | 4% |
Other | 17 | 13% |
Unknown | 35 | 26% |