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Effect of patient-initiated versus fixed-interval telePRO-based outpatient follow-up: study protocol for a pragmatic randomised controlled study

Overview of attention for article published in BMC Health Services Research, January 2017
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Title
Effect of patient-initiated versus fixed-interval telePRO-based outpatient follow-up: study protocol for a pragmatic randomised controlled study
Published in
BMC Health Services Research, January 2017
DOI 10.1186/s12913-017-2015-8
Pubmed ID
Authors

Liv Marit Valen Schougaard, Caroline Trillingsgaard Mejdahl, Klaus Hvam Petersen, Anne Jessen, Annette de Thurah, Per Sidenius, Kirsten Lomborg, Niels Henrik Hjollund

Abstract

The traditional system of routine outpatient follow-up of chronic disease in secondary care may involve a waste of resources if patients are well. The use of patient-reported outcomes (PRO) could support more flexible, cost-saving follow-up activities. AmbuFlex is a PRO system used in outpatient follow-up in the Central Denmark Region. PRO questionnaires are sent to patients at fixed intervals. The clinicians use the PRO data to decide whether a patient needs a visit or not (standard telePRO). PRO may make patients become more involved in their own care pathway, which may improve their self-management. Better self-management may also be achieved by letting patients initiate contact. The aim of this study is to obtain data on the effects of patient-initiated follow-up (open access telePRO) on resource utilisation, quality of care, and the patient perspective. The study is a pragmatic, randomised, controlled trial in outpatients with epilepsy. Participants are randomly assigned to one of two follow-up activities: a) standard telePRO or b) open access telePRO. Inclusion criteria are age ≥ 15 years and previous referral to standard telePRO follow-up at Aarhus University Hospital, Denmark. Furthermore, patients must have answered the last questionnaire via the Internet. The number of contacts will be used as the primary outcome measure. Secondary outcome measures include well-being (WHO-5 Well-Being Index), general health, number of seizures, treatment side effects, mortality, health literacy (Health Literacy Questionnaire), self-efficacy (General Self-Efficacy scale), patient activation, confidence, safety, and satisfaction. In addition, the patient perspective will be explored by qualitative methods. Data will be collected at baseline and 18 month after randomisation. Inclusion of patients in the study started in January 2016. Statistical analysis will be performed on an intention-to-treat and per-protocol basis. For qualitative data, the interpretive description strategy will be used. The benefits and possible drawbacks of the PRO-based open access approach will be evaluated. The present study will provide important knowledge to guide future telePRO interventions in relation to effect on resource utilisation, quality of care, and the patient perspective. ClinicalTrials.gov: NCT02673580 (Registration date January 28, 2016).

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Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 168 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Unknown 168 100%

Demographic breakdown

Readers by professional status Count As %
Student > Master 36 21%
Researcher 17 10%
Student > Bachelor 17 10%
Student > Doctoral Student 16 10%
Student > Ph. D. Student 14 8%
Other 27 16%
Unknown 41 24%
Readers by discipline Count As %
Nursing and Health Professions 44 26%
Medicine and Dentistry 27 16%
Psychology 9 5%
Social Sciences 7 4%
Business, Management and Accounting 6 4%
Other 23 14%
Unknown 52 31%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 1. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 26 September 2017.
All research outputs
#20,448,386
of 23,003,906 outputs
Outputs from BMC Health Services Research
#7,171
of 7,704 outputs
Outputs of similar age
#355,043
of 419,128 outputs
Outputs of similar age from BMC Health Services Research
#127
of 139 outputs
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We're also able to compare this research output to 139 others from the same source and published within six weeks on either side of this one. This one is in the 1st percentile – i.e., 1% of its contemporaries scored the same or lower than it.