Title |
Recruitment of Yoruba families from Nigeria for genetic research: experience from a multisite keloid study
|
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Published in |
BMC Medical Ethics, September 2014
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DOI | 10.1186/1472-6939-15-65 |
Pubmed ID | |
Authors |
Peter B Olaitan, Victoria Odesina, Samuel Ademola, Solomon O Fadiora, Odunayo M Oluwatosin, Ernst J Reichenberger |
Abstract |
More involvement of sub-Saharan African countries in biomedical studies, specifically in genetic research, is needed to advance individualized medicine that will benefit non-European populations. Missing infrastructure, cultural and religious beliefs as well as lack of understanding of research benefits can pose a challenge to recruitment. Here we describe recruitment efforts for a large genetic study requiring three-generation pedigrees within the Yoruba homelands of Nigeria. The aim of the study was to identify genes responsible for keloids, a wound healing disorder. We also discuss ethical and logistical considerations that we encountered in preparation for this research endeavor. |
X Demographics
Geographical breakdown
Country | Count | As % |
---|---|---|
Nigeria | 8 | 22% |
United Kingdom | 3 | 8% |
United States | 2 | 6% |
Canada | 1 | 3% |
Romania | 1 | 3% |
Sri Lanka | 1 | 3% |
Solomon Islands | 1 | 3% |
Unknown | 19 | 53% |
Demographic breakdown
Type | Count | As % |
---|---|---|
Members of the public | 33 | 92% |
Practitioners (doctors, other healthcare professionals) | 3 | 8% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
Unknown | 72 | 100% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Student > Ph. D. Student | 12 | 17% |
Student > Postgraduate | 9 | 13% |
Researcher | 8 | 11% |
Student > Master | 6 | 8% |
Student > Bachelor | 6 | 8% |
Other | 13 | 18% |
Unknown | 18 | 25% |
Readers by discipline | Count | As % |
---|---|---|
Medicine and Dentistry | 19 | 26% |
Social Sciences | 7 | 10% |
Arts and Humanities | 5 | 7% |
Biochemistry, Genetics and Molecular Biology | 4 | 6% |
Agricultural and Biological Sciences | 4 | 6% |
Other | 13 | 18% |
Unknown | 20 | 28% |