Title |
Pain care for patients with epidermolysis bullosa: best care practice guidelines
|
---|---|
Published in |
BMC Medicine, October 2014
|
DOI | 10.1186/s12916-014-0178-2 |
Pubmed ID | |
Authors |
Kenneth R Goldschneider, Julie Good, Emily Harrop, Christina Liossi, Anne Lynch-Jordan, Anna E Martinez, Lynne G Maxwell, Danette Stanko-Lopp |
Abstract |
Inherited epidermolysis bullosa (EB) comprises a group of rare disorders that have multi-system effects and patients present with a number of both acute and chronic pain care needs. Effects on quality of life are substantial. Pain and itching are burdensome daily problems. Experience with, and knowledge of, the best pain and itch care for these patients is minimal. Evidence-based best care practice guidelines are needed to establish a base of knowledge and practice for practitioners of many disciplines to improve the quality of life for both adult and pediatric patients with EB. |
X Demographics
Geographical breakdown
Country | Count | As % |
---|---|---|
United Kingdom | 3 | 13% |
United States | 3 | 13% |
Netherlands | 3 | 13% |
Italy | 1 | 4% |
Spain | 1 | 4% |
Belgium | 1 | 4% |
Sweden | 1 | 4% |
Ireland | 1 | 4% |
Unknown | 9 | 39% |
Demographic breakdown
Type | Count | As % |
---|---|---|
Members of the public | 19 | 83% |
Scientists | 2 | 9% |
Practitioners (doctors, other healthcare professionals) | 2 | 9% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
United Kingdom | 1 | <1% |
United States | 1 | <1% |
Philippines | 1 | <1% |
Brazil | 1 | <1% |
Unknown | 283 | 99% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Student > Bachelor | 38 | 13% |
Researcher | 32 | 11% |
Student > Master | 29 | 10% |
Other | 25 | 9% |
Student > Doctoral Student | 20 | 7% |
Other | 49 | 17% |
Unknown | 94 | 33% |
Readers by discipline | Count | As % |
---|---|---|
Medicine and Dentistry | 78 | 27% |
Nursing and Health Professions | 40 | 14% |
Psychology | 19 | 7% |
Agricultural and Biological Sciences | 14 | 5% |
Biochemistry, Genetics and Molecular Biology | 9 | 3% |
Other | 27 | 9% |
Unknown | 100 | 35% |