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Obtaining informed consent for clinical tumor and germline exome sequencing of newly diagnosed childhood cancer patients

Overview of attention for article published in Genome Medicine, September 2014
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About this Attention Score

  • Above-average Attention Score compared to outputs of the same age (54th percentile)
  • Average Attention Score compared to outputs of the same age and source

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Citations

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62 Dimensions

Readers on

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76 Mendeley
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1 CiteULike
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Title
Obtaining informed consent for clinical tumor and germline exome sequencing of newly diagnosed childhood cancer patients
Published in
Genome Medicine, September 2014
DOI 10.1186/s13073-014-0069-3
Pubmed ID
Authors

Sarah Scollon, Katie Bergstrom, Robin A Kerstein, Tao Wang, Susan G Hilsenbeck, Uma Ramamurthy, Richard A Gibbs, Christine M Eng, Murali M Chintagumpala, Stacey L Berg, Laurence B McCullough, Amy L McGuire, Sharon E Plon, D Williams Parsons

Abstract

Effectively educating families about the risks and benefits of genomic tests such as whole exome sequencing (WES) offers numerous challenges, including the complexity of test results and potential loss of privacy. Research on best practices for obtaining informed consent (IC) in a variety of clinical settings is needed. The BASIC3 study of clinical tumor and germline WES in an ethnically diverse cohort of newly diagnosed pediatric cancer patients offers the opportunity to study the IC process in the setting of critical illness. We report on our experience for the first 100 families enrolled, including study participation rates, reasons for declining enrollment, assessment of clinical and demographic factors that might impact study enrollment, and preferences of parents for participation in optional genomics study procedures.

X Demographics

X Demographics

The data shown below were collected from the profiles of 5 X users who shared this research output. Click here to find out more about how the information was compiled.
Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 76 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
United Kingdom 2 3%
United States 1 1%
Philippines 1 1%
Unknown 72 95%

Demographic breakdown

Readers by professional status Count As %
Researcher 17 22%
Student > Master 9 12%
Student > Bachelor 9 12%
Student > Doctoral Student 5 7%
Other 5 7%
Other 15 20%
Unknown 16 21%
Readers by discipline Count As %
Medicine and Dentistry 24 32%
Biochemistry, Genetics and Molecular Biology 8 11%
Agricultural and Biological Sciences 7 9%
Social Sciences 5 7%
Nursing and Health Professions 4 5%
Other 10 13%
Unknown 18 24%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 3. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 20 June 2022.
All research outputs
#12,877,225
of 22,711,242 outputs
Outputs from Genome Medicine
#1,197
of 1,435 outputs
Outputs of similar age
#112,061
of 249,409 outputs
Outputs of similar age from Genome Medicine
#28
of 39 outputs
Altmetric has tracked 22,711,242 research outputs across all sources so far. This one is in the 42nd percentile – i.e., 42% of other outputs scored the same or lower than it.
So far Altmetric has tracked 1,435 research outputs from this source. They typically receive a lot more attention than average, with a mean Attention Score of 25.6. This one is in the 16th percentile – i.e., 16% of its peers scored the same or lower than it.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 249,409 tracked outputs that were published within six weeks on either side of this one in any source. This one has gotten more attention than average, scoring higher than 54% of its contemporaries.
We're also able to compare this research output to 39 others from the same source and published within six weeks on either side of this one. This one is in the 30th percentile – i.e., 30% of its contemporaries scored the same or lower than it.