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Communicating cancer treatment information using the Web: utilizing the patient’s perspective in website development

Overview of attention for article published in BMC Medical Informatics and Decision Making, December 2014
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Title
Communicating cancer treatment information using the Web: utilizing the patient’s perspective in website development
Published in
BMC Medical Informatics and Decision Making, December 2014
DOI 10.1186/s12911-014-0116-4
Pubmed ID
Authors

Wendy Hopmans, Olga C Damman, Danielle RM Timmermans, Cornelis JA Haasbeek, Ben J Slotman, Suresh Senan

Abstract

BackgroundOnline cancer information can support patients in making treatment decisions. However, such information may not be adequately tailored to the patient¿s perspective, particularly if healthcare professionals do not sufficiently engage patient groups when developing online information. We applied qualitative user testing during the development of a patient information website on stereotactic ablative radiotherapy (SABR), a new guideline-recommended curative treatment for early-stage lung cancer.MethodsWe recruited 27 participants who included patients referred for SABR and their relatives. A qualitative user test of the website was performed in 18 subjects, followed by an additional evaluation by users after website redesign (N¿=¿9). We primarily used the `thinking aloud¿ approach and semi-structured interviewing. Qualitative data analysis was performed to assess the main findings reported by the participants.ResultsStudy participants preferred receiving different information that had been provided initially. Problems identified with the online information related to comprehending medical terminology, understanding the scientific evidence regarding SABR, and appreciating the side-effects associated with SABR. Following redesign of the website, participants reported fewer problems with understanding content, and some additional recommendations for better online information were identified.ConclusionsOur findings indicate that input from patients and their relatives allows for a more comprehensive and usable website for providing treatment information. Such a website can facilitate improved patient participation in treatment decision-making for cancer.

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The data shown below were collected from the profiles of 2 X users who shared this research output. Click here to find out more about how the information was compiled.
Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 105 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
United Kingdom 1 <1%
Belgium 1 <1%
Switzerland 1 <1%
Unknown 102 97%

Demographic breakdown

Readers by professional status Count As %
Researcher 17 16%
Student > Master 16 15%
Student > Ph. D. Student 13 12%
Other 12 11%
Student > Bachelor 11 10%
Other 23 22%
Unknown 13 12%
Readers by discipline Count As %
Medicine and Dentistry 34 32%
Nursing and Health Professions 10 10%
Computer Science 9 9%
Psychology 9 9%
Social Sciences 8 8%
Other 15 14%
Unknown 20 19%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 1. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 01 April 2015.
All research outputs
#15,312,760
of 22,774,233 outputs
Outputs from BMC Medical Informatics and Decision Making
#1,309
of 1,984 outputs
Outputs of similar age
#213,360
of 360,226 outputs
Outputs of similar age from BMC Medical Informatics and Decision Making
#26
of 36 outputs
Altmetric has tracked 22,774,233 research outputs across all sources so far. This one is in the 22nd percentile – i.e., 22% of other outputs scored the same or lower than it.
So far Altmetric has tracked 1,984 research outputs from this source. They receive a mean Attention Score of 4.9. This one is in the 24th percentile – i.e., 24% of its peers scored the same or lower than it.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 360,226 tracked outputs that were published within six weeks on either side of this one in any source. This one is in the 31st percentile – i.e., 31% of its contemporaries scored the same or lower than it.
We're also able to compare this research output to 36 others from the same source and published within six weeks on either side of this one. This one is in the 16th percentile – i.e., 16% of its contemporaries scored the same or lower than it.