In a 2017 study, Bogart & Irvin discovered that people with rare diseases had lower quality of life and increased worry, despair, exhaustion, pain, physical functioning, and social engagement. To read the study, please click here: https://t.co/ROfJTv5
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#DidYouKnow that adults in the U.S. living with a #raredisorder have significantly poorer quality of life compared to the public & compared to people with common chronic diseases? Read the full study here: https://t.co/zstC8Zi4tq
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#RareDiseaseDay 2020 has passed, but the challenges remain. As shown in a @ojrarediseases study, rare diseases have a significant negative impact on patients’ quality of life, even compared w/ that of people with common chronic diseases. #KnowPKdeficiency
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RT @kathleen_bogart: @SarahSDermody Thanks @US_FDA for supporting #raredisease research! People with rare disease have significantly lower…