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Care staff and family member perspectives on quality of life in people with very severe dementia in long-term care: a cross-sectional study

Overview of attention for article published in Health and Quality of Life Outcomes, December 2014
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Title
Care staff and family member perspectives on quality of life in people with very severe dementia in long-term care: a cross-sectional study
Published in
Health and Quality of Life Outcomes, December 2014
DOI 10.1186/s12955-014-0175-3
Pubmed ID
Authors

Linda Clare, Catherine Quinn, Zoe Hoare, Rhiannon Whitaker, Robert T Woods

Abstract

BackgroundLittle is known about the quality of life of people with very severe dementia in long-term care settings, and more information is needed about the properties of quality of life measures aimed at this group. In this study we explored the profiles of quality of life generated through proxy ratings by care staff and family members using the Quality of Life in Late-stage Dementia (QUALID) scale, examined factors associated with these ratings, and further investigated the psychometric properties of the QUALID.MethodsProxy ratings of quality of life using the QUALID were obtained for 105 residents with very severe dementia, categorised as meeting criteria for Functional Assessment Staging (FAST) stages 6 or 7, from members of care staff (n¿=¿105) and family members (n¿=¿73). A range of resident and staff factors were also assessed.ResultsCare staff and family member ratings were similar but were associated with different factors. Care staff ratings were significantly predicted by resident mood and awareness/responsiveness. Family member ratings were significantly predicted by use of antipsychotic medication. Factor analysis of QUALID scores suggested a two-factor solution for both care staff ratings and family member ratings.ConclusionsThe findings offer novel evidence about predictors of care staff proxy ratings of quality of life and demonstrate that commonly-assessed resident variables explain little of the variability in family members¿ proxy ratings. The findings provide further information about the psychometric properties of the QUALID, and support the applicability of the QUALID as a means of examining quality of life in very severe dementia.

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Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 84 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Spain 1 1%
Unknown 83 99%

Demographic breakdown

Readers by professional status Count As %
Student > Ph. D. Student 17 20%
Student > Master 14 17%
Researcher 12 14%
Student > Doctoral Student 8 10%
Student > Bachelor 7 8%
Other 6 7%
Unknown 20 24%
Readers by discipline Count As %
Psychology 16 19%
Nursing and Health Professions 14 17%
Medicine and Dentistry 13 15%
Social Sciences 6 7%
Agricultural and Biological Sciences 2 2%
Other 9 11%
Unknown 24 29%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 1. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 15 January 2015.
All research outputs
#15,315,142
of 22,778,347 outputs
Outputs from Health and Quality of Life Outcomes
#1,303
of 2,159 outputs
Outputs of similar age
#213,821
of 361,061 outputs
Outputs of similar age from Health and Quality of Life Outcomes
#23
of 40 outputs
Altmetric has tracked 22,778,347 research outputs across all sources so far. This one is in the 22nd percentile – i.e., 22% of other outputs scored the same or lower than it.
So far Altmetric has tracked 2,159 research outputs from this source. They typically receive a little more attention than average, with a mean Attention Score of 5.4. This one is in the 32nd percentile – i.e., 32% of its peers scored the same or lower than it.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 361,061 tracked outputs that were published within six weeks on either side of this one in any source. This one is in the 31st percentile – i.e., 31% of its contemporaries scored the same or lower than it.
We're also able to compare this research output to 40 others from the same source and published within six weeks on either side of this one. This one is in the 30th percentile – i.e., 30% of its contemporaries scored the same or lower than it.