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What do young people with rheumatic conditions in the UK think about research involvement? A qualitative study

Overview of attention for article published in Pediatric Rheumatology, May 2018
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About this Attention Score

  • In the top 25% of all research outputs scored by Altmetric
  • Among the highest-scoring outputs from this source (#20 of 472)
  • High Attention Score compared to outputs of the same age (89th percentile)

Mentioned by

32 tweeters
1 Facebook page


10 Dimensions

Readers on

27 Mendeley
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What do young people with rheumatic conditions in the UK think about research involvement? A qualitative study
Published in
Pediatric Rheumatology, May 2018
DOI 10.1186/s12969-018-0251-z
Pubmed ID

Suzanne Parsons, Wendy Thomson, Katharine Cresswell, Bella Starling, Janet E. McDonagh


Involving people of all ages in health research is now widely advocated. To date, no studies have explored whether and how young people with chronic rheumatic conditions want to be involved in influencing health research. This study aimed to explore amongst young people with rheumatic conditions, 1) their experiences of research participation and involvement 2) their beliefs about research involvement and 3) beliefs about how young people's involvement should be organized in the future. Focus groups discussions with young people aged 11-24 years with rheumatic conditions across the UK. Data was analysed using a qualitative Framework approach. Thirteen focus groups were held involving 63 participants (45 F: 18 M, mean age 16, range 10 to 24 years) across the UK. All believed that young people had a right to be involved in influencing research and to be consulted by researchers. However, experience of research involvement varied greatly. For many, the current project was the first time they had been involved. Amongst those with experience of research involvement, awareness of what they had been involved in and why was often low. Those who had previously participated in research appeared more positive and confident about influencing research in the future. However, all felt that there were limited opportunities for them to be both research participants and to get involved in research as public contributors. These findings suggest that there is an on-going need to both increase awareness of research involvement and participation of young people in rheumatology as well as amongst young people themselves.

Twitter Demographics

The data shown below were collected from the profiles of 32 tweeters who shared this research output. Click here to find out more about how the information was compiled.

Mendeley readers

The data shown below were compiled from readership statistics for 27 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Unknown 27 100%

Demographic breakdown

Readers by professional status Count As %
Researcher 6 22%
Student > Bachelor 4 15%
Student > Postgraduate 3 11%
Student > Ph. D. Student 3 11%
Student > Master 3 11%
Other 4 15%
Unknown 4 15%
Readers by discipline Count As %
Medicine and Dentistry 13 48%
Business, Management and Accounting 2 7%
Immunology and Microbiology 2 7%
Psychology 2 7%
Nursing and Health Professions 1 4%
Other 2 7%
Unknown 5 19%

Attention Score in Context

This research output has an Altmetric Attention Score of 22. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 14 June 2018.
All research outputs
of 15,922,732 outputs
Outputs from Pediatric Rheumatology
of 472 outputs
Outputs of similar age
of 282,194 outputs
Outputs of similar age from Pediatric Rheumatology
of 2 outputs
Altmetric has tracked 15,922,732 research outputs across all sources so far. Compared to these this one has done particularly well and is in the 93rd percentile: it's in the top 10% of all research outputs ever tracked by Altmetric.
So far Altmetric has tracked 472 research outputs from this source. They typically receive a little more attention than average, with a mean Attention Score of 5.2. This one has done particularly well, scoring higher than 95% of its peers.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 282,194 tracked outputs that were published within six weeks on either side of this one in any source. This one has done well, scoring higher than 89% of its contemporaries.
We're also able to compare this research output to 2 others from the same source and published within six weeks on either side of this one. This one has scored higher than all of them