Title |
Coordinated multidisciplinary care for ambulatory Huntington's disease patients. Evaluation of 18 months of implementation
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Published in |
Orphanet Journal of Rare Diseases, November 2011
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DOI | 10.1186/1750-1172-6-77 |
Pubmed ID | |
Authors |
Ruth B Veenhuizen, Branda Kootstra, Wilma Vink, Janneke Posthumus, Pleuntje van Bekkum, Margriet Zijlstra, Jelleke Dokter |
Abstract |
A multidisciplinary outpatient department was set up in the northern part of the Netherlands because of a local lack of adequate treatment and care for Huntington's disease (HD)patients. Outreaching multidisciplinary care is a novel way to optimise functioning and quality of life of HD patients. The vast majority of patients want to stay home as long as possible. Huntington's disease is a devastating neurodegenerative disorder leading to complete disability and long term residence in a specialised institution. In this paper we outline this new type of treatment and give the results of 1.5 year, we also present the results of an inquiry on the appreciation of the working method. |
X Demographics
Geographical breakdown
Country | Count | As % |
---|---|---|
Unknown | 1 | 100% |
Demographic breakdown
Type | Count | As % |
---|---|---|
Members of the public | 1 | 100% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
Chile | 1 | 1% |
Netherlands | 1 | 1% |
United States | 1 | 1% |
Unknown | 72 | 96% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Student > Master | 13 | 17% |
Researcher | 9 | 12% |
Student > Bachelor | 9 | 12% |
Student > Postgraduate | 5 | 7% |
Student > Ph. D. Student | 5 | 7% |
Other | 17 | 23% |
Unknown | 17 | 23% |
Readers by discipline | Count | As % |
---|---|---|
Medicine and Dentistry | 18 | 24% |
Nursing and Health Professions | 13 | 17% |
Psychology | 9 | 12% |
Neuroscience | 6 | 8% |
Social Sciences | 4 | 5% |
Other | 8 | 11% |
Unknown | 17 | 23% |