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Experiences of “endless” caregiving of impaired elderly at home by family caregivers: a qualitative study

Overview of attention for article published in BMC Research Notes, December 2015
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Title
Experiences of “endless” caregiving of impaired elderly at home by family caregivers: a qualitative study
Published in
BMC Research Notes, December 2015
DOI 10.1186/s13104-015-1829-x
Pubmed ID
Authors

Kazue Sakakibara, Mai Kabayama, Mikiko Ito

Abstract

In Japan, the care burden for elderly requiring care is a serious social issue due to increasing life expectancy and the resulting need for long-term care. We qualitatively described how caregivers dealt with the prolonged caregiving and incorporated caregiving into their lives. We also explained the process of "everlasting caregiving" among primary long-term family caregivers at home. Data were obtained from semi-structured interviews conducted in Japan from 2009 to 2011 about caregiving experience with 23 primary caregivers of care recipients. The grounded theory approach was applied for data analysis. In this study, caregivers perceived their caregiving as everlasting. In particular, when care recipients stayed alive or when caregivers suffered from diseases, caregivers were not determined to be "unable to perform caregiving." However, when they undertook caregiving, they thought of it in a finite sense. As a result, caregivers feel that they endure caregiving for an endless period. The long-term period of caregiving was divided into two phases, depending on whether caregivers realized the finiteness of caregiving or not. We identified five categories for surviving caregiving in these two phases as follows: Addition of a positive meaning of the use of caregiving services, Management of the use of caregiving services under the initiative of the caregivers, Receiving assistance that can be accomplished without making considerable changes in the lifestyles of family members and relatives, Obtaining available assistances as necessary provided by neighbors and friends, and Re-definition of caregiving needs. This process was named "Handling of the amount and quality of care: surviving strategies for the endless caregiving of impaired elderly at home." In this study, caregivers carried out long-term caregiving, but not without struggles. Caregivers could continue their caregiving due to initiative, maintaining the role of primary caregiver. Family members and relatives respected caregivers' individuality and decisions.

Twitter Demographics

The data shown below were collected from the profile of 1 tweeter who shared this research output. Click here to find out more about how the information was compiled.

Mendeley readers

The data shown below were compiled from readership statistics for 66 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Malaysia 1 2%
Unknown 65 98%

Demographic breakdown

Readers by professional status Count As %
Student > Bachelor 13 20%
Student > Ph. D. Student 13 20%
Student > Master 9 14%
Student > Doctoral Student 8 12%
Researcher 6 9%
Other 8 12%
Unknown 9 14%
Readers by discipline Count As %
Nursing and Health Professions 28 42%
Social Sciences 10 15%
Medicine and Dentistry 4 6%
Psychology 4 6%
Neuroscience 2 3%
Other 6 9%
Unknown 12 18%

Attention Score in Context

This research output has an Altmetric Attention Score of 1. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 02 January 2016.
All research outputs
#5,143,380
of 6,898,737 outputs
Outputs from BMC Research Notes
#1,242
of 1,818 outputs
Outputs of similar age
#205,082
of 300,587 outputs
Outputs of similar age from BMC Research Notes
#105
of 156 outputs
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