Title |
Patient and public involvement in primary care research - an example of ensuring its sustainability
|
---|---|
Published in |
Research Involvement and Engagement, January 2016
|
DOI | 10.1186/s40900-016-0015-1 |
Pubmed ID | |
Authors |
Clare Jinks, Pam Carter, Carol Rhodes, Robert Taylor, Roger Beech, Krysia Dziedzic, Steven Blackburn, Rhian Hughes, Bie Nio Ong |
Abstract |
The international literature on patient and public involvement (PPI) in research covers a wide range of issues, including active lay involvement throughout the research cycle; roles that patients/public can play; assessing impact of PPI and recommendations for good PPI practice. One area of investigation that is less developed is the sustainability and impact of PPI beyond involvement in time-limited research projects. This paper focuses on the issues of sustainability, the importance of institutional leadership and the creation of a robust infrastructure in order to achieve long-term and wide-ranging PPI in research strategy and programmes. We use the case of a Primary Care Research Centre to provide a historical account of the evolution of PPI in the Centre and identified a number of key conceptual issues regarding infrastructure, resource allocation, working methods, roles and relationships. The paper concludes about the more general applicability of the Centre's model for the long-term sustainability of PPI in research. |
X Demographics
Geographical breakdown
Country | Count | As % |
---|---|---|
United Kingdom | 12 | 39% |
Canada | 4 | 13% |
Italy | 2 | 6% |
United States | 2 | 6% |
India | 1 | 3% |
Australia | 1 | 3% |
Unknown | 9 | 29% |
Demographic breakdown
Type | Count | As % |
---|---|---|
Members of the public | 19 | 61% |
Practitioners (doctors, other healthcare professionals) | 8 | 26% |
Scientists | 3 | 10% |
Unknown | 1 | 3% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
United Kingdom | 1 | 2% |
United States | 1 | 2% |
Unknown | 53 | 96% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Student > Master | 10 | 18% |
Other | 7 | 13% |
Student > Ph. D. Student | 7 | 13% |
Researcher | 6 | 11% |
Student > Doctoral Student | 3 | 5% |
Other | 7 | 13% |
Unknown | 15 | 27% |
Readers by discipline | Count | As % |
---|---|---|
Medicine and Dentistry | 16 | 29% |
Psychology | 5 | 9% |
Social Sciences | 5 | 9% |
Nursing and Health Professions | 4 | 7% |
Biochemistry, Genetics and Molecular Biology | 3 | 5% |
Other | 5 | 9% |
Unknown | 17 | 31% |