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Share and protect our health data: an evidence based approach to rare disease patients’ perspectives on data sharing and data protection - quantitative survey and recommendations

Overview of attention for article published in Orphanet Journal of Rare Diseases, July 2019
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About this Attention Score

  • In the top 5% of all research outputs scored by Altmetric
  • Among the highest-scoring outputs from this source (#39 of 2,972)
  • High Attention Score compared to outputs of the same age (96th percentile)
  • High Attention Score compared to outputs of the same age and source (99th percentile)

Mentioned by

news
1 news outlet
twitter
88 X users

Citations

dimensions_citation
80 Dimensions

Readers on

mendeley
141 Mendeley
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Title
Share and protect our health data: an evidence based approach to rare disease patients’ perspectives on data sharing and data protection - quantitative survey and recommendations
Published in
Orphanet Journal of Rare Diseases, July 2019
DOI 10.1186/s13023-019-1123-4
Pubmed ID
Authors

Sandra Courbier, Rebecca Dimond, Virginie Bros-Facer

X Demographics

X Demographics

The data shown below were collected from the profiles of 88 X users who shared this research output. Click here to find out more about how the information was compiled.
Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 141 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Unknown 141 100%

Demographic breakdown

Readers by professional status Count As %
Student > Ph. D. Student 16 11%
Researcher 15 11%
Student > Master 13 9%
Other 8 6%
Student > Postgraduate 7 5%
Other 27 19%
Unknown 55 39%
Readers by discipline Count As %
Medicine and Dentistry 17 12%
Computer Science 12 9%
Nursing and Health Professions 11 8%
Social Sciences 11 8%
Agricultural and Biological Sciences 5 4%
Other 27 19%
Unknown 58 41%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 78. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 10 November 2022.
All research outputs
#530,770
of 24,792,414 outputs
Outputs from Orphanet Journal of Rare Diseases
#39
of 2,972 outputs
Outputs of similar age
#11,470
of 352,263 outputs
Outputs of similar age from Orphanet Journal of Rare Diseases
#1
of 69 outputs
Altmetric has tracked 24,792,414 research outputs across all sources so far. Compared to these this one has done particularly well and is in the 97th percentile: it's in the top 5% of all research outputs ever tracked by Altmetric.
So far Altmetric has tracked 2,972 research outputs from this source. They typically receive more attention than average, with a mean Attention Score of 8.0. This one has done particularly well, scoring higher than 98% of its peers.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 352,263 tracked outputs that were published within six weeks on either side of this one in any source. This one has done particularly well, scoring higher than 96% of its contemporaries.
We're also able to compare this research output to 69 others from the same source and published within six weeks on either side of this one. This one has done particularly well, scoring higher than 99% of its contemporaries.