Title |
Trust, confidentiality, and the acceptability of sharing HIV-related patient data: lessons learned from a mixed methods study about Health Information Exchanges
|
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Published in |
Implementation Science, April 2012
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DOI | 10.1186/1748-5908-7-34 |
Pubmed ID | |
Authors |
Andre Maiorana, Wayne T Steward, Kimberly A Koester, Charles Pearson, Starley B Shade, Deepalika Chakravarty, Janet J Myers |
Abstract |
Concerns about the confidentiality of personal health information have been identified as a potential obstacle to implementation of Health Information Exchanges (HIEs). Considering the stigma and confidentiality issues historically associated with human immunodeficiency virus (HIV) disease, we examine how trust-in technology, processes, and people-influenced the acceptability of data sharing among stakeholders prior to implementation of six HIEs intended to improve HIV care in parts of the United States. Our analyses identify the kinds of concerns expressed by stakeholders about electronic data sharing and focus on the factors that ultimately facilitated acceptability of the new exchanges. |
X Demographics
Geographical breakdown
Country | Count | As % |
---|---|---|
United States | 3 | 50% |
Canada | 1 | 17% |
Unknown | 2 | 33% |
Demographic breakdown
Type | Count | As % |
---|---|---|
Members of the public | 5 | 83% |
Science communicators (journalists, bloggers, editors) | 1 | 17% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
Canada | 2 | 1% |
United States | 2 | 1% |
United Kingdom | 1 | <1% |
Malaysia | 1 | <1% |
Nigeria | 1 | <1% |
South Africa | 1 | <1% |
Unknown | 136 | 94% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Student > Ph. D. Student | 24 | 17% |
Student > Master | 22 | 15% |
Researcher | 21 | 15% |
Student > Bachelor | 12 | 8% |
Student > Doctoral Student | 8 | 6% |
Other | 21 | 15% |
Unknown | 36 | 25% |
Readers by discipline | Count | As % |
---|---|---|
Medicine and Dentistry | 35 | 24% |
Social Sciences | 19 | 13% |
Computer Science | 15 | 10% |
Psychology | 9 | 6% |
Business, Management and Accounting | 7 | 5% |
Other | 20 | 14% |
Unknown | 39 | 27% |