1,225 followers
RT @RaeofSunshine79: "there remains a broad potential for the development of the practical framework regarding the systematic inclusion of…
1,225 followers
RT @anetto: Patient-reported data informing early benefit assessment of rare diseases https://t.co/uoMaO18UTW "patient preferences and pati…
4,822 followers
"there remains a broad potential for the development of the practical framework regarding the systematic inclusion of patient perspectives" More across the board QoL/qualitative representation that represents the overall patient voice would go a long way
11,327 followers
Patient-reported data informing early benefit assessment of rare diseases https://t.co/uoMaO18UTW "patient preferences and patient satisfaction are still rarely included suggesting the need for a clear-cut methodological foundation and incentives" #Patient