68 followers
RT @debraOfAmerica: In true partnership with industry, @amicusrx1, Dr. Anna Bruckner, debra ED Brett Kopelan & other experts show the chall…
RT @debraOfAmerica: In true partnership with industry, @amicusrx1, Dr. Anna Bruckner, debra ED Brett Kopelan & other experts show the chall…
In true partnership with industry, @amicusrx1, Dr. Anna Bruckner, debra ED Brett Kopelan & other experts show the challenges of living with the different types of EB. The info is taken from 156 survey responses from patients & caretakers. Read the