3,413 followers
RT @eurordis: .@Metab_ERN has published a study on the unmet needs of people living with rare metabolic diseases in Europe accessing EMA-ap…
118 followers
RT @22Q11_Ireland: Individually rare, collectively common. Ultra rare, rare & 'common' rare affecting an estimated 300,000 Irish citizens,…
1,441 followers
RT @22Q11_Ireland: Individually rare, collectively common. Ultra rare, rare & 'common' rare affecting an estimated 300,000 Irish citizens,…
4,936 followers
Individually rare, collectively common. Ultra rare, rare & 'common' rare affecting an estimated 300,000 Irish citizens, many of them children. #pledge4rare #GE2020