Health, wellbeing and lived experiences of adults with SMA: a scoping systematic review

Overview of attention for article published in Orphanet Journal of Rare Diseases, March 2020

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📌Esperienze di vita e benessere degli adulti con #SMA. ✔️Un articolo pubblicato in @ojrarediseases descrive uno studio incentrato sull’ odissea degli adulti affetti da SMA in termini di percorsi assistenziali ed esiti riportati dai pazienti. ▶️https://t.

05 Aug 2020

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Our new review on spinal muscular atrophy identifies the many uncertainties regarding best clinical practice, treatment response, and long-term outcomes for adults #SMA #RareDisease @NKasparian @nervecentrals @svucicMND https://t.co/wUpfhpzbsp https:

13 Mar 2020

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