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Key outcomes from stakeholder workshops at a symposium to inform the development of an Australian national plan for rare diseases

Overview of attention for article published in Orphanet Journal of Rare Diseases, August 2012
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  • Good Attention Score compared to outputs of the same age (67th percentile)
  • Average Attention Score compared to outputs of the same age and source

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1 policy source
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1 X user

Citations

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18 Dimensions

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63 Mendeley
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Title
Key outcomes from stakeholder workshops at a symposium to inform the development of an Australian national plan for rare diseases
Published in
Orphanet Journal of Rare Diseases, August 2012
DOI 10.1186/1750-1172-7-50
Pubmed ID
Authors

Caron Molster, Leanne Youngs, Emma Hammond, Hugh Dawkins, National Rare Diseases Coordinating Committee, National Rare Diseases Working Group

Abstract

Calls have been made for governments to adopt a cohesive approach to rare diseases through the development of national plans. At present, Australia does not have a national plan for rare diseases. To progress such a plan an inaugural Australian Rare Diseases Symposium was held in Western Australia in April 2011. This paper describes the key issues identified by symposium attendees for the development of a national plan, compares these to the content of EUROPLAN and national plans elsewhere and discusses how the outcomes might be integrated for national planning.

X Demographics

X Demographics

The data shown below were collected from the profile of 1 X user who shared this research output. Click here to find out more about how the information was compiled.
Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 63 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Unknown 63 100%

Demographic breakdown

Readers by professional status Count As %
Student > Master 12 19%
Researcher 11 17%
Student > Ph. D. Student 9 14%
Student > Doctoral Student 7 11%
Student > Bachelor 6 10%
Other 11 17%
Unknown 7 11%
Readers by discipline Count As %
Medicine and Dentistry 17 27%
Social Sciences 10 16%
Nursing and Health Professions 6 10%
Agricultural and Biological Sciences 4 6%
Psychology 4 6%
Other 13 21%
Unknown 9 14%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 4. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 26 February 2020.
All research outputs
#7,959,659
of 25,373,627 outputs
Outputs from Orphanet Journal of Rare Diseases
#1,134
of 3,105 outputs
Outputs of similar age
#57,223
of 185,635 outputs
Outputs of similar age from Orphanet Journal of Rare Diseases
#13
of 24 outputs
Altmetric has tracked 25,373,627 research outputs across all sources so far. This one has received more attention than most of these and is in the 67th percentile.
So far Altmetric has tracked 3,105 research outputs from this source. They typically receive more attention than average, with a mean Attention Score of 8.2. This one has gotten more attention than average, scoring higher than 61% of its peers.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 185,635 tracked outputs that were published within six weeks on either side of this one in any source. This one has gotten more attention than average, scoring higher than 67% of its contemporaries.
We're also able to compare this research output to 24 others from the same source and published within six weeks on either side of this one. This one is in the 41st percentile – i.e., 41% of its contemporaries scored the same or lower than it.