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Guiametabolica.org: empowerment through internet tools in inherited metabolic diseases

Overview of attention for article published in Orphanet Journal of Rare Diseases, August 2012
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About this Attention Score

  • In the top 25% of all research outputs scored by Altmetric
  • High Attention Score compared to outputs of the same age (80th percentile)
  • Good Attention Score compared to outputs of the same age and source (76th percentile)

Mentioned by

twitter
8 tweeters
facebook
3 Facebook pages

Citations

dimensions_citation
1 Dimensions

Readers on

mendeley
32 Mendeley
citeulike
1 CiteULike

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Title
Guiametabolica.org: empowerment through internet tools in inherited metabolic diseases
Published in
Orphanet Journal of Rare Diseases, August 2012
DOI 10.1186/1750-1172-7-53
Pubmed ID
22909005
Authors

Manuel Armayones, M Antònia Vilaseca, Júlia Cutillas, Jordi Fàbrega, Jorge Juan Fernández, Mei García, Natàlia Egea, Modesta Pousada, Beni Gómez-Zuñiga, Jaume Pérez-Payarols, Rafael Artuch, Francesc Palau, Mercedes Serrano

Abstract

Web-based interventions are effective on the patient empowerment. Guiametabolica.org constitutes an interface for people involved in inherited metabolic diseases, trying to facilitate access to information and contact with professionals and other patients, offering a platform to develop support groups. Guiametabolica.org is widely considered for Spanish-speaking patients and caregivers with inherited metabolic diseases. Preliminary evaluations show changes in their habits, decrease in their senses of isolation and improvement regarding self-efficacy. Specific inherited metabolic diseases websites, especially participative websites, should be considered as a complement to more traditional clinical approaches. Their contribution lies in patient's general well-being, without interfering with traditional care.

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Twitter Demographics

The data shown below were collected from the profiles of 8 tweeters who shared this research output. Click here to find out more about how the information was compiled.

Mendeley readers

The data shown below were compiled from readership statistics for 32 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Spain 1 3%
Unknown 31 97%

Demographic breakdown

Readers by professional status Count As %
Researcher 6 19%
Librarian 5 16%
Student > Master 5 16%
Student > Bachelor 4 13%
Student > Ph. D. Student 4 13%
Other 9 28%
Readers by discipline Count As %
Psychology 8 25%
Social Sciences 7 22%
Medicine and Dentistry 5 16%
Computer Science 3 9%
Design 2 6%
Other 7 22%

Attention Score in Context

This research output has an Altmetric Attention Score of 7. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 05 November 2012.
All research outputs
#3,761,855
of 18,796,975 outputs
Outputs from Orphanet Journal of Rare Diseases
#473
of 2,004 outputs
Outputs of similar age
#27,601
of 142,245 outputs
Outputs of similar age from Orphanet Journal of Rare Diseases
#3
of 13 outputs
Altmetric has tracked 18,796,975 research outputs across all sources so far. Compared to these this one has done well and is in the 79th percentile: it's in the top 25% of all research outputs ever tracked by Altmetric.
So far Altmetric has tracked 2,004 research outputs from this source. They typically receive more attention than average, with a mean Attention Score of 7.6. This one has done well, scoring higher than 76% of its peers.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 142,245 tracked outputs that were published within six weeks on either side of this one in any source. This one has done well, scoring higher than 80% of its contemporaries.
We're also able to compare this research output to 13 others from the same source and published within six weeks on either side of this one. This one has done well, scoring higher than 76% of its contemporaries.

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