MetabERN ha condotto due sondaggi sui disagi causati dalla pandemia da Covid-19 nella presa in carico e nel trattamento delle malattie metaboliche ereditarie e sull’impatto della #pandemia sui #malatirari nel periodo di marzo e aprile 2020. ➡️ https://t.c
RT @Metab_ERN: @Metab_ERN sends out a huge thank you to everyone, from physicians to patient organisations, that were involved in making th…
RT @AlanFinglas1: An important rare disease publication that I am happy to see published. Thanks to all my co-authors & all that contribute…
Congrats on the publication, Alan! 👏👏 An important paper on a category of serious disease that historically has been underfunded and many gaps in our understanding have persisted. #Metabolic #MSD #RareDisease
The impact of COVID-19 on rare metabolic patients and healthcare providers: results from two MetabERN surveys | Orphanet Journal of Rare Diseases | Full Text https://t.co/D8MIiXzJPt
RT @Metab_ERN: @Metab_ERN sends out a huge thank you to everyone, from physicians to patient organisations, that were involved in making th…
@sujas15
Individually rare collectively common #RareDiseases
RT @AlanFinglas1: An important rare disease publication that I am happy to see published. Thanks to all my co-authors & all that contribute…
RT @AlanFinglas1: An important rare disease publication that I am happy to see published. Thanks to all my co-authors & all that contribute…
RT @AlanFinglas1: An important rare disease publication that I am happy to see published. Thanks to all my co-authors & all that contribute…
RT @AlanFinglas1: An important rare disease publication that I am happy to see published. Thanks to all my co-authors & all that contribute…
RT @AlanFinglas1: An important rare disease publication that I am happy to see published. Thanks to all my co-authors & all that contribute…
An important rare disease publication that I am happy to see published. Thanks to all my co-authors & all that contributed. Did you know...there are more patients affected by rare diseases in the world today that there are by Cancer and Covid 19 #Metab
RT @Metab_ERN: @Metab_ERN sends out a huge thank you to everyone, from physicians to patient organisations, that were involved in making th…
@Metab_ERN sends out a huge thank you to everyone, from physicians to patient organisations, that were involved in making this research and article possible. #ERNeu #collaboration #workingtogether https://t.co/weA5O6nIqL
RT @ojrarediseases: Congratulations! https://t.co/TsVGVy45ky
RT @PropertyColin: My first author credit in @ojrarediseases A great collaborative effort of many associated with @Metab_ERN to achieve p…
Congratulations!
My first author credit in @ojrarediseases A great collaborative effort of many associated with @Metab_ERN to achieve publication Thank you to everyone who completed a survey. https://t.co/93zW9RNXDR