Title |
How should we discuss genetic testing with women newly diagnosed with breast cancer? Design and implementation of a randomized controlled trial of two models of delivering education about treatment-focused genetic testing to younger women newly diagnosed with breast cancer
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Published in |
BMC Cancer, July 2012
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DOI | 10.1186/1471-2407-12-320 |
Pubmed ID | |
Authors |
Kaaren J Watts, Bettina Meiser, Gillian Mitchell, Judy Kirk, Christobel Saunders, Michelle Peate, Jessica Duffy, Patrick J Kelly, Margaret Gleeson, Kristine Barlow-Stewart, Belinda Rahman, Michael Friedlander, Kathy Tucker, for the TFGT Collaborative Group |
Abstract |
Germline BRCA1 and BRCA2 mutation testing offered shortly after a breast cancer diagnosis to inform women's treatment choices - treatment-focused genetic testing 'TFGT' - has entered clinical practice in specialist centers and is likely to be soon commonplace in acute breast cancer management, especially for younger women. Yet the optimal way to deliver information about TFGT to younger women newly diagnosed with breast cancer is not known, particularly for those who were not suspected of having a hereditary breast cancer syndrome prior to their cancer diagnosis. Also, little is known about the behavioral and psychosocial impact or cost effectiveness of educating patients about TFGT. This trial aims to examine the impact and efficiency of two models of educating younger women newly diagnosed with breast cancer about genetic testing in order to provide evidence for a safe and effective future clinical pathway for this service. |
X Demographics
Geographical breakdown
Country | Count | As % |
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Australia | 1 | 33% |
Spain | 1 | 33% |
Unknown | 1 | 33% |
Demographic breakdown
Type | Count | As % |
---|---|---|
Members of the public | 2 | 67% |
Science communicators (journalists, bloggers, editors) | 1 | 33% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
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United States | 2 | <1% |
Malaysia | 1 | <1% |
Brazil | 1 | <1% |
Norway | 1 | <1% |
Japan | 1 | <1% |
United Kingdom | 1 | <1% |
Unknown | 195 | 97% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Student > Master | 33 | 16% |
Student > Ph. D. Student | 29 | 14% |
Researcher | 28 | 14% |
Student > Bachelor | 19 | 9% |
Other | 10 | 5% |
Other | 40 | 20% |
Unknown | 43 | 21% |
Readers by discipline | Count | As % |
---|---|---|
Medicine and Dentistry | 57 | 28% |
Psychology | 30 | 15% |
Nursing and Health Professions | 25 | 12% |
Social Sciences | 7 | 3% |
Agricultural and Biological Sciences | 6 | 3% |
Other | 25 | 12% |
Unknown | 52 | 26% |