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Improving the quality of life of palliative and chronic disease patients and carers in remote Australia with the establishment of a day respite facility

Overview of attention for article published in BMC Palliative Care, July 2016
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Title
Improving the quality of life of palliative and chronic disease patients and carers in remote Australia with the establishment of a day respite facility
Published in
BMC Palliative Care, July 2016
DOI 10.1186/s12904-016-0136-1
Pubmed ID
Authors

Timothy A. Carey, Kellie Schouten, John Wakerman, John S. Humphreys, Fred Miegel, Simon Murphy, Mick Arundell

Abstract

In the Northern Territory (NT) there is a lack of respite services available to palliative care patients and their families. Indigenous people in the NT suffer substantially higher rates of poorly controlled chronic disease and premature mortality associated with poor heath than the Australian population as a whole. The need for a flexible, community based, culturally appropriate respite service in Alice Springs was identified and, after the service had been operating for 10 months, a qualitative evaluation was conducted to investigate the experiences of people involved in the use and operation of the service. Semi-structured interviews were conducted with patients, carers, referrers, and stakeholders. A total of 20 people were interviewed. Interpretative Phenomenological Analysis was used inductively to analyse the transcripts. Two case studies are also described which illustrate in greater detail the impact the respite service has had on people's lives. From the semi-structured interviews, two superordinate themes along with a number of sub themes were developed. The two superordinate themes described both "The Big Picture" considerations as well as the pragmatics of "Making the Service Work". The sub themes highlighted issues such as being stuck at home and the relief that respite provided. The case studies poignantly illustrate the difference the respite service made to the quality of life of two patients. The findings clearly indicate an improvement in quality of life for respite patients and their carers. The respite service enabled improved care coordination of chronic and complex patients as well as improved medication compliance and symptom management. As a result of this evaluation a number of recommendations to continue and improve the service are provided.

X Demographics

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The data shown below were collected from the profiles of 4 X users who shared this research output. Click here to find out more about how the information was compiled.
Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 110 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Unknown 110 100%

Demographic breakdown

Readers by professional status Count As %
Student > Master 14 13%
Researcher 14 13%
Student > Bachelor 13 12%
Student > Ph. D. Student 12 11%
Student > Postgraduate 8 7%
Other 18 16%
Unknown 31 28%
Readers by discipline Count As %
Nursing and Health Professions 27 25%
Medicine and Dentistry 19 17%
Social Sciences 10 9%
Computer Science 4 4%
Psychology 4 4%
Other 10 9%
Unknown 36 33%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 3. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 22 April 2017.
All research outputs
#13,240,863
of 22,881,154 outputs
Outputs from BMC Palliative Care
#894
of 1,255 outputs
Outputs of similar age
#192,239
of 363,150 outputs
Outputs of similar age from BMC Palliative Care
#22
of 26 outputs
Altmetric has tracked 22,881,154 research outputs across all sources so far. This one is in the 41st percentile – i.e., 41% of other outputs scored the same or lower than it.
So far Altmetric has tracked 1,255 research outputs from this source. They typically receive more attention than average, with a mean Attention Score of 9.5. This one is in the 27th percentile – i.e., 27% of its peers scored the same or lower than it.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 363,150 tracked outputs that were published within six weeks on either side of this one in any source. This one is in the 46th percentile – i.e., 46% of its contemporaries scored the same or lower than it.
We're also able to compare this research output to 26 others from the same source and published within six weeks on either side of this one. This one is in the 15th percentile – i.e., 15% of its contemporaries scored the same or lower than it.