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Establishing a network of specialist Porphyria centres - effects on diagnostic activities and services

Overview of attention for article published in Orphanet Journal of Rare Diseases, December 2012
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Title
Establishing a network of specialist Porphyria centres - effects on diagnostic activities and services
Published in
Orphanet Journal of Rare Diseases, December 2012
DOI 10.1186/1750-1172-7-93
Pubmed ID
Authors

Mette C Tollånes, Aasne K Aarsand, Jørild Haugen Villanger, Egil Støle, Jean-Charles Deybach, Joanne Marsden, Jordi To-Figueras, Sverre Sandberg, On behalf of the European Porphyria Network (EPNET)

Abstract

The porphyrias are a heterogeneous group of rare metabolic diseases. The full spectrum of porphyria diagnostics is usually performed by specialized porphyria laboratories or centres. The European Porphyria Initiative (EPI), a collaborative network of porphyria centres formed in 2001, evolved in 2007 into the European Porphyria Network (EPNET), where participating centres are required to adhere to agreed quality criteria. The aim of this study was to examine the state and distribution of porphyria diagnostic services in 2009 and to explore potential effects of increased international collaboration in the field of these rare diseases in the period 2006-2009.

X Demographics

X Demographics

The data shown below were collected from the profiles of 3 X users who shared this research output. Click here to find out more about how the information was compiled.
Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 7 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Unknown 7 100%

Demographic breakdown

Readers by professional status Count As %
Researcher 1 14%
Student > Doctoral Student 1 14%
Unknown 5 71%
Readers by discipline Count As %
Biochemistry, Genetics and Molecular Biology 1 14%
Medicine and Dentistry 1 14%
Unknown 5 71%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 3. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 18 December 2012.
All research outputs
#15,095,138
of 25,654,806 outputs
Outputs from Orphanet Journal of Rare Diseases
#1,545
of 3,163 outputs
Outputs of similar age
#169,439
of 287,847 outputs
Outputs of similar age from Orphanet Journal of Rare Diseases
#22
of 44 outputs
Altmetric has tracked 25,654,806 research outputs across all sources so far. This one is in the 40th percentile – i.e., 40% of other outputs scored the same or lower than it.
So far Altmetric has tracked 3,163 research outputs from this source. They typically receive more attention than average, with a mean Attention Score of 8.2. This one is in the 49th percentile – i.e., 49% of its peers scored the same or lower than it.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 287,847 tracked outputs that were published within six weeks on either side of this one in any source. This one is in the 40th percentile – i.e., 40% of its contemporaries scored the same or lower than it.
We're also able to compare this research output to 44 others from the same source and published within six weeks on either side of this one. This one has gotten more attention than average, scoring higher than 50% of its contemporaries.