Scoping review of the recommendations and guidance for improving the quality of rare disease registries
Article in Orphanet Journal of Rare Diseases (May 2024)
The most recent citing publications are shown below. View all 11 publications that cite this research output on Dimensions.
Article in Orphanet Journal of Rare Diseases (May 2024)
Preprint in medRxiv (February 2024)
Article in International Journal of Metadata Semantics and Ontologies (December 2023)