Title |
Ancillary study management systems: a review of needs
|
---|---|
Published in |
BMC Medical Informatics and Decision Making, January 2013
|
DOI | 10.1186/1472-6947-13-5 |
Pubmed ID | |
Authors |
Elizabeth K Nelson, Britt Piehler, Adam Rauch, Sarah Ramsay, Drienna Holman, Smita Asare, Adam Asare, Mark Igra |
Abstract |
The valuable clinical data, specimens, and assay results collected during a primary clinical trial or observational study can enable researchers to answer additional, pressing questions with relatively small investments in new measurements. However, management of such follow-on, "ancillary" studies is complex. It requires coordinating across institutions, sites, repositories, and approval boards, as well as distributing, integrating, and analyzing diverse data types. General-purpose software systems that simplify the management of ancillary studies have not yet been explored in the research literature. |
X Demographics
Geographical breakdown
Country | Count | As % |
---|---|---|
India | 2 | 67% |
United States | 1 | 33% |
Demographic breakdown
Type | Count | As % |
---|---|---|
Practitioners (doctors, other healthcare professionals) | 3 | 100% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
Italy | 2 | 3% |
Japan | 1 | 2% |
Luxembourg | 1 | 2% |
Switzerland | 1 | 2% |
Unknown | 58 | 92% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Researcher | 10 | 16% |
Student > Master | 9 | 14% |
Student > Ph. D. Student | 6 | 10% |
Student > Bachelor | 6 | 10% |
Professor | 4 | 6% |
Other | 13 | 21% |
Unknown | 15 | 24% |
Readers by discipline | Count | As % |
---|---|---|
Medicine and Dentistry | 11 | 17% |
Nursing and Health Professions | 9 | 14% |
Computer Science | 6 | 10% |
Engineering | 4 | 6% |
Agricultural and Biological Sciences | 3 | 5% |
Other | 15 | 24% |
Unknown | 15 | 24% |