Establishing a core outcome set for mucopolysaccharidoses (MPS) in children: study protocol for a rapid literature review, candidate outcomes survey, and Delphi surveys

Overview of attention for article published in Trials, November 2021

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Great to see two patient partners and @CanMPSSociety ED Kim Angel as co-authors! Critical perspectives in core outcome set development and incredibly valuable insights @COMETinitiative @BethPotter4

09 Dec 2021

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RT @INFORMRARE: *NEW PAPER ALERT* We are developing a core outcome set for mucopolysaccharidoses (MPS) in children. First step: a rapid rev…

08 Dec 2021

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RT @INFORMRARE: *NEW PAPER ALERT* We are developing a core outcome set for mucopolysaccharidoses (MPS) in children. First step: a rapid rev…

08 Dec 2021

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RT @INFORMRARE: *NEW PAPER ALERT* We are developing a core outcome set for mucopolysaccharidoses (MPS) in children. First step: a rapid rev…

08 Dec 2021

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