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The tip of the iceberg: challenges of accessing hospital electronic health record data for biological data mining

Overview of attention for article published in BioData Mining, September 2016
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About this Attention Score

  • In the top 25% of all research outputs scored by Altmetric
  • High Attention Score compared to outputs of the same age (82nd percentile)
  • Good Attention Score compared to outputs of the same age and source (77th percentile)

Mentioned by

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16 X users

Citations

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8 Dimensions

Readers on

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57 Mendeley
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Title
The tip of the iceberg: challenges of accessing hospital electronic health record data for biological data mining
Published in
BioData Mining, September 2016
DOI 10.1186/s13040-016-0109-1
Pubmed ID
Authors

Spiros C. Denaxas, Folkert W. Asselbergs, Jason H. Moore

Abstract

Modern cohort studies include self-reported measures on disease, behavior and lifestyle, sensor-based observations from mobile phones and wearables, and rich -omics data. Follow-up is often achieved through electronic health record (EHR) linkages across primary and secondary healthcare providers. Historically however, researchers typically only get to see the tip of the iceberg: coded administrative data relating to healthcare claims which mainly record billable diagnoses and procedures. The rich data generated during the clinical pathway remain submerged and inaccessible. While some institutions and initiatives have made good progress in unlocking such deep phenotypic data within their institutional realms, access at scale still remains challenging. Here we outline and discuss the main technical and social challenges associated with accessing these data for data mining and hauling the entire iceberg.

X Demographics

X Demographics

The data shown below were collected from the profiles of 16 X users who shared this research output. Click here to find out more about how the information was compiled.
Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 57 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
United Kingdom 2 4%
Spain 1 2%
Unknown 54 95%

Demographic breakdown

Readers by professional status Count As %
Student > Bachelor 9 16%
Researcher 8 14%
Student > Ph. D. Student 6 11%
Student > Master 6 11%
Student > Postgraduate 4 7%
Other 14 25%
Unknown 10 18%
Readers by discipline Count As %
Medicine and Dentistry 13 23%
Engineering 8 14%
Computer Science 7 12%
Biochemistry, Genetics and Molecular Biology 4 7%
Agricultural and Biological Sciences 3 5%
Other 9 16%
Unknown 13 23%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 10. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 12 December 2016.
All research outputs
#3,442,401
of 24,653,581 outputs
Outputs from BioData Mining
#66
of 319 outputs
Outputs of similar age
#56,454
of 327,193 outputs
Outputs of similar age from BioData Mining
#3
of 9 outputs
Altmetric has tracked 24,653,581 research outputs across all sources so far. Compared to these this one has done well and is in the 86th percentile: it's in the top 25% of all research outputs ever tracked by Altmetric.
So far Altmetric has tracked 319 research outputs from this source. They typically receive more attention than average, with a mean Attention Score of 7.5. This one has done well, scoring higher than 79% of its peers.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 327,193 tracked outputs that were published within six weeks on either side of this one in any source. This one has done well, scoring higher than 82% of its contemporaries.
We're also able to compare this research output to 9 others from the same source and published within six weeks on either side of this one. This one has scored higher than 6 of them.